A.S. Face 2135: Sara Bjoin

Face 2135

My name is Sara Bjoin and I was diagnosed with AS in 2018. This group has been an incredible blessing for me since I was officially diagnosed. I have had symptoms for almost ten years now. About 5 years ago I had what I thought was an answer. My doctor at the time had done an xray and sent me to a neurologist who had diagnosed me with sway back and slight deterioration. Numbness in my arms upon awakening and having an increasingly hard time standing when I wake up over the next 5 years along with horrible back and hip pain made me seek different medical advice after moving. My new doctor was was quick to do a new xray where sclerosis was found in my hips, bone spurs were found clear down my spine, and fusion was found at my s1. I was immediately recommended to a wonderful rheumatologist who explained to me what AS is, what bamboo spine is, and she started me on humera right away. I’ve also been on prednisone which had helped a bit with the bone spurs in my feet. But due to job changes my insurance has lapsed and now I have been off of all meds for a month and all symptoms are back full force. I never once thought any of this could happen to me. I am a mother of 3 and this could not be any more of a sad challenge.

Oregon, United States of America

3 Responses to “A.S. Face 2135: Sara Bjoin”

Dear Sara,
Thank you so much for sharing your story with us.
Sincerely Cookie

Cookie Has A.S. said this on April 27, 2019 at 1:03 pm | Reply
I prayed for you.

marcella said this on April 28, 2019 at 5:16 pm | Reply
Welcome Sara ! A.S. Is a challenge indeed.
At least you figured out what you’re dealing with.
I hope have you support in family/friends.
I know if you ever need a shoulder or good
people to lean on…..you will always have your
A.S. family to reach out to and count on
for support.
Blessings to you

audieann said this on April 29, 2019 at 6:21 pm | Reply

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