A.S. Face 2124: Lisa

Face 2124
My name is Lisa and I was diagnosed with AS seven years ago. I started biologics 2 years ago and have had some positive results. My symptoms started in childhood, but it was always put off as growing pains or from sports. After I had my first child the pain was excruciating and just thought it was from having a baby. But I couldn’t stand up with my baby in my arms, my knees hurt in a terrorizing way, my back felt like it was crumbling and I was living off ibuprofen, until my stomach started to hate me.

It was a long road to diagnosis. The pain and fatigue is hard to deal with daily. I have two awesome children and a husband who are my world.

This disease can leave you in a bad place at times. So much pain, so much fatigue and feeling like no one understands. I feel like I fake it until I make it everyday and sometimes that is even exhausting. But I will fight! Fight to find a treatment regimen and be my own advocate, fight to be an active mother and wife, fight to be productive and find peace even within the pain.

Support groups for people living with AS has been such a blessing to me! It is awesome to be among people who understand the struggle. Thank you Cookie for creating the faces of AS!

Utah, United States of America


4 Responses to “A.S. Face 2124: Lisa”

  1. Dear Lisa,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Love

  3. Welcome and Thankyou for sharing your story. The AS groups have been a great help to me too. Wishing you all the best with your treatment.Love Trish

  4. Hi Lisa I totally understand your story and
    I think Cookie deserves SOMETHING SPECIAL
    for bringing people together from all over the
    world. There’s caring degrees of AS but we’re
    all in the same boat basically.
    It’s been very hard for me too. At age 4
    symptoms started rearing their ugliness.
    I don’t want to bum you out with my issues.
    Lol I’m old enough to be your grandma.
    I’ve been following COOKIES AMAZING SITE
    for almost 6 years now. I’ve finally sent my
    FACE to Cookie and will soon be added to the
    AS family. So many wonderful suffering souls
    out there.
    I told Cookie she’s a LEADER and a HEALER
    for bringing people from all over the world
    together.
    Sending you a gentle hug from Wisconsin

    ☮️✝️ audie

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