A.S. Face 2118: Gloria Makosy

Face 2118

My name is Gloria Makosy. I’m 46 yo. I was diagnosed 10 years ago but I’ve had back pain since high school. When I was 16 I was diagnosed with spondylolisthesis and assumed that was the cause for all my pain. It wasn’t until I started having Raynauds that I went to see a rheumatologist. She was the doctor who finally discovered I had the gene and put me on sulfasalazine. Well, a couple years later my husband was diagnosed with colorectal cancer so I put all my time and energy into caring for him and stopped meds and dr visits for me. Three years since he’s passed, I’m now in a lot of pain. I have an appointment in a couple weeks but the pain is shooting all over my back and in my hips. My left foot where I had to had a titanium toe joint put in due to arthritis, hurts 24/7. The pain in my back right flank keeps me awake at night and hurts all the time. I’m frustrated and scared. I don’t want to not be able to workout anymore or become disabled. I want to be active with my family.

Maryland, United States of America

3 Responses to “A.S. Face 2118: Gloria Makosy”

  1. Dear Gloria,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. I am sorry for your loss. That’s hard.
    Know that you are not alone

    Hope you get some relief

  3. Hello Gloria,

    Very sorry for your loss and pain. This condition is different for each person but I have been able to maintain martial arts and yoga with some reluctant adaptation. I have had AS since I was 16 and the pain still is difficult to accept so I look at it as an enemy I am fighting. I make it a person or thing that I will defy. This helps me. Along with prayer. My Ex asked for a divorce after 20 years due to my condition… but losing a spouse is a very different thing. I wish you all the best and will keep you in my prayers.


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