A.S. Face 2064: Amy

Face 2064

Hi, I have been diagnosed with AS since 2002 but my symptoms started when I was a child. I fell ill when I was in the 4th grade and was Hospitalized for a week. I couldn’t walk or eat that whole time. The dr finally just said it was some foreign type of flu. Several Drs were on my case but they really didn’t know what was wrong. So from then on, I had issue after issue. In high school, I wanted to do all that everyone else did. I was involved with lots of clubs, activities, and was a cheerleader. I hurted every day and was so tired and weak all the time. I kept pushing on but I did go to many Drs trying to figure out what was wrong with me. They all came back with fibromyalgia and depression.
Years past and I became a mom of 2 boys. Since I wanted to raise my own children instead of sending them to daycare, I opened my own home daycare. Then the health issues really started showing its face. I got where I couldn’t walk at all because the pain in my legs, hips, and back was so bad. When I would lay down, I would have to get help to get in bed and then someone would pick up and move my legs for me. If no one was around, then I would have to pick up my legs and move them with my hands. I even had to use crutches while I was still being a caretaker of several children. Then one day I woke up with something terribly wrong with my eye. The first 2 eye dr visits they treated me for conjunctivitis. Then it became so bad that I had to keep my eye covered with my hand and not move my eye at all because the pain was so bad I couldn’t stand it. So we found another eye dr and he immediately diagnosed it as iritis. He said that he was going to give me a shot into the eyeball because it was so bad he couldn’t wait for oral medicine to work. I was hurting so bad, I immediately agreed to the shot. Anything in order to make the pain go away. It was then that the eye dr asked about the rest of my health. I told him how I hurt all over and especially in my hips and back. So then to the rheumatologist and the diagnosis of AS.
Since then, I have not only been diagnosed with AS but also Sjögren syndrome, raynauds, fibromyalgia, tarsal tunnel syndrome, and others. I am the only one in my family that has this diagnosis but within the last 2 years my oldest son came down with all these issues and is on Humira. Now, within the past 2 weeks, I have learned my youngest son is HLAB27 positive and with many aches and pains. I still work because I have to help provide for my family but it is very hard. One day I hope that I will be able to cut some of my hours so I can rest more. Sorry to all that has these problems.

Alabama, United States of America


One Response to “A.S. Face 2064: Amy”

  1. Dear Amy,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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