A.S. Face 2058: Don Taylor

Face 2058

I was officially diagnosed with AS in 2012 after seeing endless and often clueless doctors for over a decade. No one even thought it was AS or tested for it.

I had misdiagnosis one doctor after another and so-called specialist after the other and no one could explain why I was in so much pain, why I had swelling in my joints, why there were times when I got out of bed in the morning I would completely collapse in pain and couldn’t stand or support myself.

I had always been active, working 8-12 hours a 5 days a week, outside in Las Vegas weather. But my mobility and health were declining and I had unbearable pain radiating from my lower back, down both legs. My neck was unable to fully turn in either direction and it was painful to breathe several times a month.

Finally, I moved from Las Vegas to Southern California and after a long search and more “I don’t know” diagnosis I found a primary Dr. who said I needed to see a rheumatologist and get Xrays and MRI. After 12 years I was told by my rheumatologist who specializes in AS that I did indeed have advanced AS and I would later learn I also have AS related complications including C.O.P.D. and Angioedema.

It’s a struggle every day to just get out of bed and get moving. My awesome wife of 33 years now has to help me put on my socks and pants many days because I can’t bend down, and she never complains. Some days I’m able to live a somewhat normal life yet other days the pain, fatigue and brain fog reach unbearable.

But as my daughter tells me, your a Taylor and my daddy (she’s 36 lol) and you don’t get to give up or give in to AS. I’m blessed with having a family to help and understand the best they can. And blessed with having an extended AS family of warriors online to help each other and know what life with AS is really like.

Don Taylor
Garden Grove, California, United States of America

One Response to “A.S. Face 2058: Don Taylor”

  1. Dear Don,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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