A.S. Face 2052: Stacie Eilers

Face 2052

Here is my story:
Nebraska USA: Stacie J. Eilers I have AS. It was around 8 years for me to be officially diagnosed after my symptoms became evident. I had a very challenging pregnancy (after being told I could not have a child). Amazing doctors helped my son arrive but 3 months early. I would not change that but the focus was always on the baby and not very directly on my health. After my son was born I was adjusting to being a new mom but was also adjusting to having the symptoms of AS and not knowing that is what it was. I went through a string of doctors and mis-treatments and diagnoses and was emotionally devastating. I continue to struggle a lot with emotions as I have learned they cause a lot of my symptoms. I never realized before this disease how greatly emotions are tied to your health.

After 6 years of always feeling like there was something not right with me after the pregnancy, I asked my physician if that was going to be the way I felt for the rest of my life. Thank goodness he said he would tell me when we were there and that was not it or I would have given up at the age of 30. I found a rheumatologist who believed in me and that it was not just in my head. She treated me outside of the box most physicians put patients into. I found an amazing physical therapist I have been working with the last couple of years to regain my strength I lost while waiting for a treatment. I make progress and then seem to always hit a road block for one reason or the other. I continue to keep fighting to break through as there are many more things I want out of this life. I have also began eating a Whole30/Keto type diet and it has made a world of difference. I have gone from not remembering when my last good day was to not remembering when my last flare was. I do have daily challenges but I am still able to work, drive and continue to keep fighting against this ugly disease.

Thank you for letting me share my story with you and finding the courage to share your stories and visions with others.

Stacie Eilers

Nebraska, United States of America


2 Responses to “A.S. Face 2052: Stacie Eilers”

  1. Dear Stacie,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi Stacie! Thanks for sharing your story. I also live in Nebraska and have yet to get a diagnosis, but when I learned about AS, I felt that I finally found the answer to tie together all of these random symptoms. The next step is getting diagnosed. Would you mind sharing with me the name of your rheumatologist? Maybe she is someone who could help me. (I’m about an hour from Omaha.) Prayers for you. Thanks.

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