A.S. Face 1984: Tarbay

Face 1984Face 1984a

Hello everyone!!! My nickname is Tarbay and I have Ankylosing Spondylitis. I first experienced this brutal disease back in the mid 90’s with severe back pain that lasted for quite a long time. I was hurt that my doctor would tell me there was nothing wrong according to all the testing we did. It made me go crazy and depressed. Time would pass and things got calmer but there was stiffness always and my body never went back the way I hoped it would.

Fast forward to 2008 when the very first person that mentioned I have A.S. to me was a new Chiropractor that I decided to see. Immediately it struck a chord because I have a younger brother that I am not close to that was diagnosed with A.S. before myself. I then got a new doctor and he did an X-ray because of what I told him and the Chiropractor was correct.

Now that we are in 2018 and I have been in treatment with Remicade for almost 10 years. I am lucky and happy of what my health status has been. I do have Crohn’s disease also that comes along with A.S. for some people and doing well. There are so many others out there that are undiagnosed and many that are in very rough shape. I keep my hope and faith but never forget the others who struggle every single day.

I miss doing fun things like going on roller coasters and being able to roll around on the ground in the grass. I have learned to cope the best I can and access support when possible as needed.

Thank you for taking time to read about my short version of my Ankylosing Spondylitis story.

I want to Thank Cookie for creating this amazing page on Facebook for support and the wonderful bracelet she sent me.  Big hugs from Canada.

Ontario, Canada

 

 


One Response to “A.S. Face 1984: Tarbay”

  1. Dear Tarbay,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

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