A.S. Face 1797: Meghan

Face 1797bFace 1797aFace 1797

I first suspected something was wrong in 2002 (at 22).  I had terrible fatigue and mild but constant pain.  Getting a diagnosis was a journey.  I’m thankful to finally know what is going on and to be able to treat it.  I was diagnosed last year in 2016 (at 36).

My life (and my AS) has had lots of ups and downs.  There were times when I was very functional (working a amazing full-time job, going to law school at night, volunteering 20+ hours a week, running 5ks while pregnant).  There have been times when I’ve been much less functional (using a walker to get from the bed to the toilet and not doing much else).  Most days (and years) are somewhere in between.

I’m currently a mom (two toddlers), a government analyst, an almost-lawyer (have the degree, but have not yet taken the bar exam), a cat rescuer (volunteer and am on the board of directors for a non-profit cat rescue), a pilates enthusiast (it has helped so much with the AS) and a disability activist (and really general political activist).

 Pennsylvania, United States of America

3 Responses to “A.S. Face 1797: Meghan”

  1. Dear Meghan,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Thank you for bringing some light to AS it is badly needed.
    I have been suffering since High School early 80’s and went undiagnosed till 4 years ago. After a blood test for the HLA- B 27 gene.

  3. You are amazing! Keep strong and you will be the winner..not the AS

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