A.S. Face 1789: Susan Carson Hill

I was misdiagnosed with MS. Took 7 years to get this diagnosis. I started having issues as a child. As a teenager, I started having pain along my right hip bone. I had bone spurs develop in my feet. I walked on my toes since infancy. Can’t do that anymore. My childhood Dr’s begged my parents to put leg braces on me. They refused. I don’t know the reason. Years of pain and fatigue, and I couldn’t hold jobs for long. I had 2 girls to raise by myself. Long story. Their dad was a deadbeat. Anyway, I spent long hours on my feet, working. I would come home and literally be too tired to do anything. I thought this was normal! I have 4 bulging discs. Two are herniated with a synovial cyst in my lower back. Bone spurs along my spine, and osteoarthritis in my right hip and both hands. I also have a host of other autoimmune disorders. Diabetes Type 2, hypothyroidism, and possibly lupus. They are still trying to figure it all out.

In 2007, I could not stand for any length of time. Had a work-related injury, and was no longer able to work.

Tennessee, United States of America

6 Responses to “A.S. Face 1789: Susan Carson Hill”

  1. Dear Susan,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Susan, we have similar issues and ways of coping! My pain started in my twenties but didn’t know the cause. When I was 28, I did an aerobics class and during the exercise part, I rationalized that everyone’s lower back hurt like mine did while doing this. It is good to know there are others that understand, totally! I am now 60 and both of my sons have AS.

  3. So sad that there is so much suffering
    And so difficult to tell you to stay strong..but just know that you have many friends in this group that share your pain

  4. Welcome Susan. Hopefully you will get complete diagnosis soon.
    I’m also from TN.

  5. Thank you Cookie, for opening the 1000 Faces of Ankylosing Spondilytis. Thank you for adding my bio, to this project. Thank you for reaching out and for encouragement.

    Gretta, Aletta, Patti, thank you for your kind comments. It means so much to know I am not alone in this.

    Currently, I am waiting to start another biologic. I have a severe intolerance to medications. So please pray, I am able to find one soon that works. The Dr’s are all trying to help me with various autoimmune diseases. The combination leaves me swollen and I am gaining weight rapidly. I’m not fat because I want to be. I know each autoimmune diseases has an effect on the body. Staying positive and knowing somewhere there are answers and possibly cures may come. I keep searching and believing. Most of all, I am thankful for good days! Oh! I have started water therapy! It feels so good and it helps. I plan on continuing aqua therapy after my prescribed time is up. The monthly fee is small enough to work into my tight budget. Lol. And I want to be as active for as long as I can. My three grandsons are inspiring me to push through this painful disease. Each day is a blessing!

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