A.S. Face 1789: Susan Carson Hill

I was misdiagnosed with MS. Took 7 years to get this diagnosis. I started having issues as a child. As a teenager, I started having pain along my right hip bone. I had bone spurs develop in my feet. I walked on my toes since infancy. Can’t do that anymore. My childhood Dr’s begged my parents to put leg braces on me. They refused. I don’t know the reason. Years of pain and fatigue, and I couldn’t hold jobs for long. I had 2 girls to raise by myself. Long story. Their dad was a deadbeat. Anyway, I spent long hours on my feet, working. I would come home and literally be too tired to do anything. I thought this was normal! I have 4 bulging discs. Two are herniated with a synovial cyst in my lower back. Bone spurs along my spine, and osteoarthritis in my right hip and both hands. I also have a host of other autoimmune disorders. Diabetes Type 2, hypothyroidism, and possibly lupus. They are still trying to figure it all out.

In 2007, I could not stand for any length of time. Had a work-related injury, and was no longer able to work.

Tennessee, United States of America


4 Responses to “A.S. Face 1789: Susan Carson Hill”

  1. Dear Susan,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Susan, we have similar issues and ways of coping! My pain started in my twenties but didn’t know the cause. When I was 28, I did an aerobics class and during the exercise part, I rationalized that everyone’s lower back hurt like mine did while doing this. It is good to know there are others that understand, totally! I am now 60 and both of my sons have AS.

  3. So sad that there is so much suffering
    And so difficult to tell you to stay strong..but just know that you have many friends in this group that share your pain

  4. Welcome Susan. Hopefully you will get complete diagnosis soon.
    I’m also from TN.

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