A.S. Face 1773: Jacky
My name is Jacky, I’m 28 years old living with Ankylosing Spondylitis and I am a Spoonie. My symptoms first started when I was 24 with hip pain/stiffness, lower back pain, and swollen, inflamed joints in my hands. Because other members of my family had autoimmune diseases I thought that could be what i had and I was referred to a rheumatologist that diagnosed me with Ankylosing Spondylitis based on my symptoms, me being HLA-B27+, and a very, very small irregularity on the inside of my SI joint. He started me on Humira (after trying a couple other things) and that helped tremendously. Unfortunately, I had to leave his office a couple months later so the Humira supply ran dry and the pain came rushing back.
Very recently I was also told that I may have POTS because of a near syncope episode I expierenced and I had an abnormal EKG. I’m not sure what is caused by what or if any of these things work that way, but managing all of it certainly has been difficult and I am so thankful for the support of my husband Eric, my family and the AS community!!
Being in pain all the time is extremely taxing on the body and mind. I want to live this free life of positivity and happiness, but on the days when you’re cemented to the bed it sure can be hard to find that light! I have severe anxiety and it’s proven to be difficult to not allow all of this to consume me. Everyday I fight to feel better and to find the answers. So often I want to give up, but I still have hope that there are brighter days waiting for me somewhere.