A.S. Face 1699: Teresa Reifsnyder

Hi my name is Teresa Reifsnyder.  Most of you all know me as Scarletkaye  on here in our group. I’ve been diagnosed  with AS for the past 7 years now and its progressing  slowly thanks to my terrific  Rheumatoid Arthritis Specialist.  He has tried so many things and finally found a combo that works on this ailing with my other autoimmune  diseases which are fibromyalgia  degenerative disc disease  neuropathy and just tired lol. I hope people know we all are in pain everyday even though  we don’t  look like it. I did accounting  for most of my life until 4 years ago and I could no longer sit and deal with back and leg pain. I am 58 years old and still feel I have a lot of life left but this disease steals so much away! Thanks so much for reading and I am hoping they find a cure.
Love,
Teresa

Maryland, United States of America


3 Responses to “A.S. Face 1699: Teresa Reifsnyder”

  1. Dear Teresa,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi there
    Yes we are in a lot of pain but we s manage to find ways to enjoy lifessss

  3. I worked as a financial analyst for years until 2 years ago I quit my job because I couldn’t tolerate the back pain from sitting long hours then commuting 1 hr each way to & from work. (I’m 57). After a lumbar xray My rheumy says it’s osteoarthritis (even after complaints of periodic pain in my shoulders, hips, hands, knees & feet). I also suffer from ulcerative colitis (for 25 yrs). My blood work is all normal (no inflammation – I am on antiinflammatories for my UC and hla-b27 is negative) no indications of lupus or RA or AS …. So rheumy dx me w fibromyalgia … ugh!
    I eat whole foods – no preservatives and limit my inflammatory foods – stay moving until I’m just too tired – work PT from home now (w a heating pad on my back for >3hrs behind the computer) and as supervisor in a small gift store (that keeps me moving – and I sit when I get tired). My back is a mess – the smallest movement gives it quite a twinge … gardening – that I love makes me ache for days.
    I plug along – actually don’t know if I’d want to treat with biologics if I was ever dx’d – scared of side effects … so I move move move.

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