Arkansas, United States of America
Thank you so much for being a part of my vision.
Cookie Has A.S. said this on August 3, 2016 at 12:22 pm | Reply
The worst part about being chronically sick isn’t just physical pain, it’s the emotional pain that goes along with it. You reach a point where you can’t hold back the tears any longer and suddenly you’re breaking down in the middle of a conversation with a stranger or in a doctor’s office. You think you can escape the emotional torture; your disease is purely physical, There is no way to make the incurable go away. We learn to tolerate the physical pain. You have to. But it’s the overwhelming emotional burden that makes you feel like someone is holding your head down in the water. You can fight it, but you can never overcome that crushing feeling. How are you supposed to get rid of an emotional suffocation when the source of it is never going to go It’s so hard not to feel anxious or depressed or completely lost when all that lies ahead is a giant question mark. You rarely seem to get answers when you are sick. And when you do, they’re often the answers you wish you hadn’t heard any way
There’s one thing every single sick person wishes for, Hope. Hope that one day things will get better. Hope that there will finally be a day when your pain is a zero on that silly little scale. Hope that one day you’ll get a glimpse of normal.
You learn to love every good second, every good minute, of any of those few good days you might You know it’s not important to dwell on the little things. You have more important things to worry about.
Being sick makes you strong. Being sick makes you weak. Being sick gives you insight and knowledge about life as it eats away at your own. Being sick is so much more than just having an illness. It’s having your entire life be taken out of your control, and fighting to get it back. And that fight will never end.
These support sites help us battle together and get stronger and give each other that hope
My story is the same as most of you
I’ve been sick since my 20 s diagnosed in my 40s fighting every day thru numerous meds and hair loss hospitalization from meds side effects!
In bed for 2 years, picking myself up , walked off the steroid weight gain, Walking even while in pain has given me some of my life back I’m out of bed and trying to socialize.
I refuse to give up ! We are so strong if we lift each other up.
Melinda said this on August 3, 2016 at 1:01 pm | Reply
I started having unbearable pain at 17 now I’m 59 and I have had a hard time with it. As a younger person I managed because no one else understood my problems. This included Dr’s. I know they still don’t understand and it’s frustrating. 20 years ago I had a Rheumatologist who also had AS. He understood what it was like. I really liked him but my insurance changed so I was forced to go to another Dr who didn’t have it. In my experience just do what you can, stay active stretch, run, walk, swim just keep active and keep pushing your self as much as you can stand for as long as you can.
Randy Scott said this on August 3, 2016 at 3:54 pm | Reply
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