A.S. Face 1595: Ashley Rose

Face 1595

I was diagnosed at age 12. I am 30 years old now and a mother of a beautiful and energetic 9 year old girl. I struggle a lot, to pay for medicine, to walk, to get out of bed, and to be the mom I wish I could be. It does get me down that there are days when I can’t play with her, I can’t run around outside, or ride my bike. AS has taken a lot, but I won’t let it take my spirit and my drive. I’m going to try and I’m going to do as much as I can when I can. That’s all we can do. Power through the bad days and embrace the good days when they happen.

– Ashley Rose

Pennsylvania, United States of America


10 Responses to “A.S. Face 1595: Ashley Rose”

  1. Dear Ashley,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Thanks for sharing Ashley, keep that spirit going.

  3. Ashley,
    Thanks for bravely sharing your story.

  4. Ashley Rose, welcome to the group! My story is A.S. Face 1514.

    • Thank you! I read your story. I was also very athletic. I played guys and girls lacrosse in high school and lacrosse at Drexel dispute my symotoms and diagnosis. Sadly (but not sadly..) being so young when I first had symptoms and a diagnosis at 12… I grew up with the pain. It’s become second nature for me. Even during terrible flare ups where I was using my cane, I could muster the will and strength to coach 5k’s with the girls on the run program, train on my bike so that come race day I could run with my daughter. Sometimes I don’t know how I push myself. There are mornings I crawl to the bathroom and just pray I make it. Sometimes I don’t. And I wonder how I got here, but I can’t let that negativity take me over. So I push myself another day. You seem like a such a strong woman too. I really enjoyed reading your story and appreciated you sharing it as well.

  5. Thanks for sharing Ashley, welcome to the Faces of AS

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