A.S. Face 1595: Ashley Rose

I was diagnosed at age 12. I am 30 years old now and a mother of a beautiful and energetic 9 year old girl. I struggle a lot, to pay for medicine, to walk, to get out of bed, and to be the mom I wish I could be. It does get me down that there are days when I can’t play with her, I can’t run around outside, or ride my bike. AS has taken a lot, but I won’t let it take my spirit and my drive. I’m going to try and I’m going to do as much as I can when I can. That’s all we can do. Power through the bad days and embrace the good days when they happen.

– Ashley Rose

Pennsylvania, United States of America

10 Responses to “A.S. Face 1595: Ashley Rose”

Dear Ashley,
Thank you so much for sharing your story with us.
Sincerely Cookie

Cookie Has A.S. said this on March 17, 2016 at 11:47 am | Reply
- Thank you for giving me an opportunity to be a part of this amazing community!
  
  Ashley Rose said this on August 19, 2017 at 8:11 pm | Reply
Thanks for sharing Ashley, keep that spirit going.

sridharn18 said this on March 17, 2016 at 11:55 am | Reply
- Thank you! I try!
  
  Ashley Rose said this on August 19, 2017 at 8:12 pm | Reply
Ashley,
Thanks for bravely sharing your story.

Joy said this on March 17, 2016 at 1:15 pm | Reply
- ❤️
  
  Ashley Rose said this on August 19, 2017 at 8:12 pm | Reply
Ashley Rose, welcome to the group! My story is A.S. Face 1514.

Lillian Frederick said this on March 17, 2016 at 6:45 pm | Reply
- Thank you! I read your story. I was also very athletic. I played guys and girls lacrosse in high school and lacrosse at Drexel dispute my symotoms and diagnosis. Sadly (but not sadly..) being so young when I first had symptoms and a diagnosis at 12… I grew up with the pain. It’s become second nature for me. Even during terrible flare ups where I was using my cane, I could muster the will and strength to coach 5k’s with the girls on the run program, train on my bike so that come race day I could run with my daughter. Sometimes I don’t know how I push myself. There are mornings I crawl to the bathroom and just pray I make it. Sometimes I don’t. And I wonder how I got here, but I can’t let that negativity take me over. So I push myself another day. You seem like a such a strong woman too. I really enjoyed reading your story and appreciated you sharing it as well.
  
  Ashley Rose said this on August 19, 2017 at 8:20 pm | Reply
Thanks for sharing Ashley, welcome to the Faces of AS

Patti Young said this on March 18, 2016 at 4:44 pm | Reply
- Thank you!
  
  Ashley Rose said this on August 19, 2017 at 8:20 pm | Reply

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