A.S. Face 1570: Carol Janse van Rensburg

Face 1570

 

My name is Carol Janse van Rensburg. I live in  South Africa. I was diagnosed with AS in May 2013. I have been struggling with lower back pain most of my life but the last few years the pain has moved to my mid back and neck area as well as my ankles knees and wrists. there is not a day that goes by that i am not in pain. some days are more than others. other parts of my body have been affected such as my eyes, mouth and glands. the last few days my feet and ankles are swolen badly and any sores that i get takes forever to heal.
I am currently on various medicines but my Rheumatologist wants me to use Humira. the problem i have is that my current medical aid does not cover the cost. i have to increase my medical aid plan but its difficult due to financial reasons. i am paying for my sons universaty fees.
i can only hope and pray that all will be well. some people say its all in my head and i have withdrawn myself from most people as i dont want to be seen as someone constantly complaining.
i do however feel and empthasize with fellow AS sufferers as people in general dont know what your pain and suffering entails.
i still  keep faith that my God heals and will keep on believing that i will become better.
Thank you for your blog. its comforting to know that others also experience the same. unfortunately some more than others. i pray that we will be overcomers and will place this disease under our Feet.
South Africa, Africa

13 Responses to “A.S. Face 1570: Carol Janse van Rensburg”

  1. Dear Carol,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Try “go fund me” to see if you can get help with your medications. I don’t know how to go about it but look it up, it won’t hurt. I hate to hear that you cant afford your meds, it will make a difference in your life.

    • Hi

      Thank you will definately check it out. Appreciated.

      regards

      • Carol

        Most drug companies have programs that pay your co-pay so you end up paying $0. I have been on Humira, Enbrel and am currently taking Cimzia and have never paid for the medications. Go to Humira’s website or ask your rheumatologist for a packet. Good luck! Tammy

  3. Call Humira and become an Ambassador. They will help cover the cost if not all of it and really provide help along the way. My situation is very similar and Humira has really helped with the pain in my feet and wrists and I have only been on it a few months. Hope this helps.

  4. Oooh! Hope you can get freehelp Carol.I’m a British citizen in Spain just discovering tonight what a.s is all about. Already diagnosed I paid not much attention until a few weeks ago – chronic pain- neck shoulders spine elbows wrists and fingers. Hard to sleep; hot water helps temp. Had 2 hip ops. Last one 2014. Dr advised fused bones and one out of place bone now to blame for pain. Familiar with inflammation internally. Will follow advice and drug use now. Tch! Could do without this now…….. Keep sane Carol!

    • Hello Christine.

      Thanks for caring. I hope all will be well with you as well. I know it can be very difficult at times. I thank God for Good days, family and friends, their understanding and love.

      I hope and pray that you have more good than bad days. 😊

      Kind Regards

      Carol

  5. Welcome Caro!

  6. Welcome Carol!

  7. Hi. I am also from SouthAfrica. Have you tried Low Dose Naltroxene? If so, what are the effects, and how long have you been on it? Many thanks

  8. Also did you have any luck with getting funding?

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