A.S. Face 1531: Beth

Face 1531

I recently saw a quote that said “do not focus on what you have lost but instead focus on what you will do with you what you have left.”

This inspired me after what has been a challenging year with finally getting a diagnosis at 37 of having ankylosing spondylitis. There are days that I don’t even recognize this new me.

I am determined to fight back against the constant pain and extreme fatigue that this disease causes. I take joy in the little things like my backyard vegetable garden my family and my dogs. These keep me going on the bad days and I find small ways that I can continue to be active including the purchase of a recumbent trike that I discovered through the wounded warrior program.  To everyone with this disease I am inspired by your courage and determination and grateful for your advice. I send you healing energy.

Maryland, United States of America

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2 Responses to “A.S. Face 1531: Beth”

  1. Dear Beth,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Beth: Thanks for sharing! My son used to say, “You never know how strong you are until being strong is all you have left.” I love that saying, and yours, as well! He hung onto that as long as he could until he passed away in July 2013.

    I can totally relate to the parts of your story about being in pain and extreme fatigue. I don’t know which is worse. I get myself upright and going in the morning to go to work, and it takes a lot of effort on some days. Then, once I get to work, the extreme fatigue really takes its toll on me, and it makes me so angry, because I cannot control it This went on for YEARS AND YEARS until I was finally diagnosed at the age of 49. When I was a kid, I remember telling my mother that I hurt, and she would keep saying it was growing pains!

    Even with medications to control some of the pain, I still cannot control the FATIGUE! I was glad to see that you are a dog fan, as I don’t know what I would do without my three fur babies. They keep me going with taking walks (holding onto a stroller to keep myself upright). My husband, daughter, and son-in-law also keep me going! All the best to you, Beth, in your journey with A.S.!!! God bless! Stephania ~ #445

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