A.S. Face 1384: Jamie D.

Face 1384

My story starts about 2 years ago about a year after I had my son Jacob. I had gotten back into shape and even ran a half marathon. I started getting pain in my back on the left side that would spread all the way to the front by the belly button. I have a long history of kidney stones since I was around 10 years old. I am now 36. So my urologist, assuming it was kidney stones which I did have at the time, did a couple of surgeries to remove them but the pain never went away. He decided to send me to a gastro doctor who did some tests also and did not find anything. The gastro dr is the one who suggested it might be muscular. He sent me to a phsiatry dr who finally did the MRI. When the MRI came back all they told me was to see a rheumy. Once I got to that appointment she told me that I have AS. I was shocked and never heard of this disease. I cried and she told me to go home and do some research then come back and that there was no cure but it could be treated. I was devastated. It took about a year to finally get the diagnoses.
She started me on enbrel which gave me horrible muscle aches all over my body and landed me in the ER. I then tried humira for about a month which wasn’t working. Then to Cimzia. I did not feel that she was treating me great and she could never answer the questions I had on the disease. About 3 months ago I found a new Rheumy who seems to know her stuff and is helpful with the pain. She has me back on humira because she believes I did not try it for long enough. She also has me on something called diclofenac.
My life has changed dramatically the past 2 years. I went from being so active to gaining some weight and not being able to exercise much. My husband is very athletic and I wish I could work out with him again. I am hoping that I finally find the right medication and I can get some of my old life back. But I know I will never be the same person who I used to be. My 4 year old son and my wonderful husband help me through the day good or bad. I know I just have to keep going and that’s the best I can do!! Everyone’s stories on this web site have helped me realize that I am not alone!!
Illinois, United States of America
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2 Responses to “A.S. Face 1384: Jamie D.”

  1. Dear Jamie,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. hi !!!!! plz start zero starch diet at the earliest….the results will amaze you…..seriously….also see http://www.kickas.org ….thats our ankylosing community…..cheers,gautam,india

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