A.S. Face 1332: Marnicka Silvesan

My name is Marnicka Silvesan

I don’t have a long story but here it is.

I’m 35 now and was diagnosed at age 30 with A.S. I’ve suffered since my first flair at age twelve. I’ve had a lot of xrays a few MRIs with no prevail on my pain. At age thirty I was having a hard time walking the pain was over whelming so my primary doc sent me to a pain doc and he said degenerate bone disease my doc sent me to a arthritis doc who tested me for the gene which came back positive. I’ve been struggling off and on. Been on bio meds and anti inflammatory meds but still suffer.

I make the best of every day which is all we really can do with this horrible pain.

Many blessing to those who fight every day to live.
Maine, United States of America

5 Responses to “A.S. Face 1332: Marnicka Silvesan”

Dear Marnicka,
Thank you so much for sharing your story with us.
Sincerely Cookie

Cookie Has A.S. said this on July 7, 2014 at 11:33 am | Reply
Hello Marnicka: Welcome to the group. I can really relate to what you are saying. I, too, am on medications, but still I suffer every day. For years I was told I had degenerative disc disease, until finally in 2011, I was diagnosed with AS. I’m hoping for something that will actually work on this lousy disease and give all of us some relief. Thank you for sharing. Stephania, #445

fordste1@msu.edu said this on July 7, 2014 at 11:45 am | Reply
Marnicka,
Thank you for sharing your journey. I agree, we MUST make the most of each day.
I admire your courage.
Jacquie
Face 377

Jacquie said this on July 7, 2014 at 12:08 pm | Reply
Thanks for your story. It’s always nice to know I’m not alone in the horrible pain. You’re right making the best of our days and pray for a cure!
Blessings,
Nadean Amen

Nadean said this on July 7, 2014 at 1:59 pm | Reply
Thanks for taking the time to tell your story !! I also have this A.S. and was diagnosed at 35 an am now 40. It took about 3 years to finally know what was wrong with me. It is nice to hear you say day to day. That is all we can do. Take care,

Shiloh Cody

Shiloh Cody said this on July 8, 2014 at 7:41 pm | Reply

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