A.S. Face 1318: Tim Lalli

Face 1318

 

 

My name is Tim Lalli, 32 Y/O male currently from Port Orchard Washington. I am currently serving in the U.S. Navy as a Culinary Specialist with 14 years served. I was diagnosed with A.S. in August of 2013 but have experienced pain and symptoms since 2002. Been through absolute HELL dealing with Dr’s and being told “nothing is wrong”, or “it’s just normal wear and tear”!! At 20 years old, there were many times I couldn’t walk at all.

For many years just dealt with the pain and continued to serve full active duty and deployed in support of operation Iraqi freedom. 2011 things deteriorated so badly that my neck kept locking, I couldn’t stand straight up and just incredible amount of pain. In and out of the ER, occasionally looked at as a drug seeker due to the many IV doses of Hydromorphone and ketemine they would give me, but only to have the pain fully return the next day.

I was falsely diagnosed with a blood clot while serving in Yokosuka Japan and put on blood thinners. During the blood thinner treatment, I was also set up to get flown to Okinawa to receive spinal injections to relieve pain. The night before my flight, I randomly browsed the lovenox website which boldly states ” DO NO UNDERGO SPINAL INJECTIONS WHILE ON LOVENOX AS IT MAY CAUSE A BLOOD CLOT OF THE SPINE RESULTING IN PERMANENT PARALYSIS. ” I canceled my injections and brought that to the attention of my Dr’s and one said it’s great I caught that while another said I would have been fine. Crazy!!!!

Finally a Dr. I met with in August 2013 when i returned to the states, made it his point to get to the bottom of my pain. Many tests later he came back and said he strongly believes I have A.S. He says all of the symptoms perfectly match along with being HLA-B27+. From that point it was a life of self education…. Reading everything about A.S. I possibly could and trying to find a common denominator that would ease my pain. Still dealing with a great deal of pain, frequent flares and debilitating fatigue. Occasional iritis and chest pain.

Already fused in my cervical spine.
I’m currently going through a medical board where they are reviewing my entire medical history to determine if they will let me stay in for 6 more years so that I can proudly retire after 20 years of service. They quite possibly may just tell me to hit the road. It’s scary not knowing what my future holds in many aspects of life.

I have been through it all. Depression hit incredibly hard in 2011 when the pain was isolating me from everything and everyone including my wife. She has been my rock and has been by my side. I was going through a suicidal period of my life in 2011. It’s hard for me to talk about it because it takes me back to that time and I do not know how I’m still alive today. Went through addiction due to the massive amounts of opiate medication my Dr. had me on. I was taking up to 10mg of Dilaudid 3 times a day.

I’m now opiate free and only take Lyrica and mobic. Tried Humira for 3 months but felt like I had the flu the entire time. If I’m allowed to stay in, I plan to ask about other med options.

I’m still dealing with a great deal of depression but it’s more so associated with my career and not knowing what will happen or when I have my flares. Life has been incredibly hard but I’m learning so much and going through a huge lifestyle change in hopes I will find a new beginning.

Hopefully in the next few months I will find out if the Navy will let me continue my service. Thank you for letting me share my sorry.

~Regards
Tim Lalli

Washington, United States of America

 

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5 Responses to “A.S. Face 1318: Tim Lalli”

  1. Dear Tim,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Thank you for sharing your story! Hope you are on the faces facebook page too, so you have a community to turn to in your times of need. Praying for your board evaluation, and you pain.

  3. I also was misdiagnosed with blood clotting disorder. A radiologist who read my MRI said I had severe pelvic vein thrombosis. I suffered for almost a year with tests, blood draws, constantly checking my INR levels, and in and out of the hospital. I eventually sought a second opinion and after close reevaluation it was determined that I did not have a blood clotting disorder. My AS had fused parts of SI joints and had caused pelvic congestion syndrome.

    I can sympathize with much of what you are going through. Just remember that you are not in this alone and you have a great amount of support through this site and many others including FB groups.

    Thank you for your service.

    Tiffany
    Washington State

    • Thank you Tiffany for your reply (and everyone else’s reply). It’s been an incredible struggle and the saddest part is that 80% of my struggle has been unnecessary and all due to the incompetence of the the medical field and military…. Don’t get me wrong, I love serving my country and what serving means to me in my heart…. But…. I am nothing more than just a number to them and any reason for them to release me, they will… Even if that means falsifying documents (thinking I won’t check or know what to look for). Or just simply using the system to kick me out with as little money spent and no post-benefits.

      Thank you all again for your prayers, best wishes and comments. I wish you and your families all the best.

      ~Regards:
      Tim

  4. I was diagnosed with AS in 1977, I was an Army student , I retired from the US Army Nurse Corps in 1993. There were many flare ups along the way, time taken off and other issues. At that time they weren’t so quick to board you. I took Indocin and other medications to manage my pain. The Indocin can affect your kidneys so I don’t take it anymore.

    The only med I take for AS is Enbrel injection Try the Enbrel now and see if it helps you. I tried Humira and it was a no go.

    Hang in there. Pray that the board sees you as an asset , that you can do your job although you have limitations. My best to you. Marcella

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