A.S. Face 1255: Sharon Krause

Face 1255Hi. My name is Sharon. I’m 46. I was in a car accident in 1991. I was 23. I was hit on the drivers side. I ended up in ER the next day in severe pain. I had 3 bulging discs. After over 2 years of PT and pain still severe my PCP sent me for MRI and opinion from a rheumy    They did a series of blood tests including HLA B27. The doctors told me I could of lived my life not knowing I had AS, but trauma brought it “out”. My estranged sister also has AS but her issues are different than mine. She has chrohns and iritis.
I stayed with my first rheumy who was great and became a “friend” until March 2013 after she forgot to give me MRI results of more bulging discs and pushing pain meds (perks, flexeril, Valium, cortisone) instead of treating my AS and fibro. I have been on so many different meds. I need labs every six months, because I was born with only my right kidney. I tried humira for 3 years and learned from current rheumy the dose wasn’t enough and caused damage. I’ve been out of work 18 months (I think my nursing days are over). I applied for disability. I was denied and my lawyer appealed.
I have spurs, SI joint damage, disc issues and my spine is rigid. My right leg is unbearable at times. I started remicade a year ago. It’s going ok but still have chronic pain every day along with other issues. My husband, two kids, family and friends are great, but this group really helps and understands. Thank you!!
Sharon Krause,

Boston Massachusetts, United States of America

 

 


2 Responses to “A.S. Face 1255: Sharon Krause”

  1. Dear Sharon,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Sharon, I can really relate to your story. It sounds exactly like mine. I was paralysed at age 17 from a work related fall (30 ft). After extensive PT I walked out of the hospital 13 wks later with a walker and a permanent limp.
    I had poor feeling in my legs all my life but didn’t really get any AS symtoms t till I was 55. Now at 66 I have extreme pain in my joints, especially the SI
    joint. I’ve taken all the meds you have and still do. I just started a biologic and it is too early to tell if it will improve my condition. I just received my first shot in early April. It takes 2-3 months to feel any improvement. I go for massages twice a month and still take tramadol and vicodin. What everyone is saying in the group is so like me. I think people who have AS can really understand where everyone is coming from. I honestly feel bad for everyone. I want to exercise more, but always tired and fatigued. I now go for PT twice a week. She had me do a number of exercises and then does a massage at the end. Not sure if all this will improve or not. If you care to send me a email it’s ebarbar@msn.com

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