A.S. Face 1251: Tiffany
My name is Tiffany and I am 24 years old, I have struggled with issues with sore back and hips since I was a teen and was told it was fine and normal to have “pains”. I got pregnant at 21 and instead of enjoying my pregnancy I was in unimaginable pain that no one could understand. Why was it so painful to move so early in my pregnancy, doctors told me baby must be on my sciatica and it would go away. So after basically not moving for the last 2 months of my pregnancy because of the pain I finally thought I would get relief after my son was born. But things continued to get worse so several tests a rheumatologist and nearly 2 years after the pains started I was diagnosed with AS. I had never heard of it and did what my doctor told me to painkillers and mess to prevent stomach ulcers and getting sick from them everyday I thought there had to be another option. So we tried cortisone steroid shots into my SI joint but that didn’t work either. Last suggestion I have gotten is biologics but I have chosen not to start them after reading the risks with prolonged use. I am still trying to find relief of the pain after now 3 years of ongoing pain and not knowing where to find advice and help. I do not know anyone else with AS or anyone who has ever heard of it making it hard for people to understand what I experience everyday. I am affected mostly in my hips and lower back now but only had one X-ray done 2 years ago in my hips so I am not even sure of the state it is in. Each day is a challenge to get out of bed as most nights are sleepless ones from the pain, I have a hard time bending over to get things or hold my kids but I am searching for answers and help everywhere to make life more manageable.