A.S. Face 1195: Eric Skaggs

Face 1195

My name is Eric Skaggs and I am from smiths grove, ky.  I this year will be 52 years old. I was diagnosed with AS at about the age of 35 at Vanderbilt hospital in Tn.  Always had alot of back issues and arthritis since a young age. After being labeled with as and starting meds for treatment in about 2004 my rheumatolist that diagnosed me died suddenly with cancer.  So until now I have not had a rheumatolist.  My family doctor has been treating me. In past years I have had 2 to 3 rounds a year with infection and get through it.  A few years ago was put on embrel injections and done well until was discontinued due to bad lung infection.  The past 3 years have been a challenge.  In 2011 had a shoulder redone. In 2012 had my rt knee redone. In march of 2013 was hospitalized with a possible heart attack, but wasn’t.  April 2013 hospitalized for a heart cath to find as had affected the electrical part of my heart. In may 2013 after meds tocorrect not work had a ablation.  The ablation did not work. June 2013 had pacemaker implanted. July 2013 2nd pacemaker implanted. Everything seemed to be working better after this but then in sept 2013 started having breathing problems again. Did not mention in about 2011 labeled with copd due to the fact spine stiff and now more recently sternum froze up so lungs cant expand any more. Sept 2013 was sent to tenn heart Institute where I was told due to AS had a dialated aortic root causing extra pressure in chest. I have bowel problems from all the meds I have to take. Dec 2013 hospitalized with severe lung infection being given antibiotics and steroids by iv. Been struggling ever since trying to find someone or some treatment to help me get just stabilized.  Spent this past weekend in hospital for severe spinal infection. Dr wants to send me to mayo clinic to try to get everything under control but financially can’t. I  now have a family dr, 2 cardiac drs, a stomach dr, a neurologist, a pulmonalogist and an orthopedic dr. Now facing a new rheumatolist and hopefully a new treatment plan. Been told need a new knee.  AS not only attacks joints but it is now attacking all my organs and dr’s don’t have a clue what to do. Need more awareness.  Used to plan ahead now its one day at a time.
Thanks Eric Skaggs Smiths Grove, KY. if anyone close to me with AS I’d like to hear from you.
Kentucky, United States of America

5 Responses to “A.S. Face 1195: Eric Skaggs”

  1. Dear Eric,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hello…I am from Greensburg Ky. I too have AS…FOR NEARLY 30 YRS…. my mom and step dad live in Smiths Grove also…Keith and Roberta Thompson…just wondering if you knew them

  3. You have definitely had a rough time of it, Eric; more so than most of us! I’ve had more infections these last four years on Humira than all my years before combined & was almost hospitalized twice due to nonhealing infections. Hope they find an effective treatment plan & things can finally improve for you & your family.

  4. Eric, so sorry for all u have been thru… god has a plan for everyone. my daughter, now 30, was seen by many doctors at vandy and also cripple childrens hosp. they informed me that brandy would die soon , at this time she was 7. they asked if we could go to the mayo clinic. some friends raised money and we were able to go. they ran tests on her for 5 days and told me that she has a mild form of C.M.T. a form of Muscular Dis. i highly recommend the mayo clinic for u. financially i know it will be hard but my daughter is 30 married and has 3 kids. : ) she also goes to college. all of which vandy said would never happen. i hope this story may inspire u to reconsider the mayo clinic. praying for better health for u. : )

  5. No I don’t know them. I live toward brownsville but my address is smiths grove.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

 
%d bloggers like this: