A.S. Face 1190: G.C.

         I currently live in Houston Texas and am 28 years old.

 

I was diagnosed with AS may of 2010, ironically enough two weeks after my graduation from college which i thought was the happiest time of my life. At the time i was not aware of exactly what this disorder does to your body. I had researched my symtomps for years and i came across AS online but didn’t pay too much attention to it since i thought i just had chronic back pain. Pain initially started in my heel when i was in highschool, occasional severe backpain and around age 19 SI joint was so painful that it started affecting my ability to walk from time to time.
After a severe groin pain i decided to mention my stiff back and chest pain to my Dr. and she immidiately knew it was AS. Ever since then i have been seeing a rhumatologist and been on medication and physical excercise regime. Although my symptoms are not as severe, it can leave me immobile for few days at times when the what we call flares happen.

Generally inflammation in ones body peaks out during this time. I researched for few days and came across a website called www.kickas.org Here people like me shared their experience and knowledge and what works for them. So the more i read, and i applied the knowledge i learned better i started feeling.

I am currently on NSD (No Starch Diet) and half the medication dose a day and i can excercise and run and even play sports from time to time. I wake up with less pain and agony and overall i continue my life like rest of the population. On the downside although i am mostly pain free, AS is creeping forward in the background. My SI joints are nearly fused and there is abnormal curvature on my neck, thank god no fusing on my spine yet or any other visual problems.

You can look as normal as can be from outside but AS really eats you up from inside and mentally  as well but the day AS wins is the day you stop living your life. Excercise, adjust your diet and Excercise! Just keep moving and stay active!

I hope everyone a pain free life!
Houston Texas United States of America


10 Responses to “A.S. Face 1190: G.C.”

  1. You sound a lot like me, it’s nice to see someone looking at the good. Thanks for letting me see your optimism. Oh and I found kickas too, it’s so helpful.

  2. Nice positive post, despite the circumstances.

  3. Dear G,
    Thank you for sharing your story with us. The sad thing about A.S. is the doctors are lax about treatment because we don’t look sick and we get lax about treatment because we don’t feel that sick. Keep up the good work.
    Sincerely Cookie

  4. Welcome–I agree with the exercise part–at least that is what has helped me. After 9 years of being out of karate, I started back last year. The stretches esp help me but so does the moving about.–esp since I have an understanding Sensei and he ‘get’s my limitations. In about 3 weeks, (at age 50) I’ll be testing for black belt. (again with a few modifications such as no jump kicks, no contact sparring..). I may have AS, but it doesnt have me.

  5. Thanks for kind words everyone. I really recommend NSD for everyone, it can’t hurt to try for few months. It’s very hard to adjust at first to cut off all the starch we are used to eating everyday but the benefits in my case are far greater than giving up some favorite foods.

    Cookie, unfortunately that’s stroy of AS. It’s a life long disorder and progresses so slowly but surely which can lead doctors to lose their sense of urgency about it.

  6. Thank you for sharing your story, G. I’ve been very curious to try a no starch diet, but on a limited income and having a young child the timing just hasn’t been right. I too found kickas.org to be a huge source for information after being diagnosed seven and a half years ago.
    Also, hello from a fellow (temporary) Houstonian!

  7. abby – NSD can be little rough on the income as you will mostly consume meats, veggies and fruits but it will make a world of difference! Are you seeing any rhumatoligsts in houston ?

    Elizabeth – That’s so encouraging! You can’t let AS rob you of your dreams. Im so glad to hear and wish you good luck.

    Cookie- i will get you that story in turkish, i promise 🙂 My turkish is not as good anymore since i’ve been living in US as early teens.

    • My Medicaid was just approved a few days ago, so hopefully I will be seeing one very soon! I’m waiting on someone from UT Physicians to call me back with an appointment. I haven’t been in the care of a rheumatologist in nearly four years, so I’m very scared of finding out how much damage has been done to my spine from being off Enbrel for so long.

  8. G!!!!!!!!!!!!!!!

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