A.S. Face 1174: Brittney

Face 1174

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My name’s Brittney and I was diagnosed with AS two years ago at just 20. I live in Massachusetts and see one of the best rheumatologist in Boston but she can not figure out how to get my pain and inflammation under control. The diagnosis came as a complete shock, every doctor I saw told me my pain was normal(even though my pain tolerance is extremely high and my back pain brought me to tears and I eventually had to leave college because I couldn’t walk around campus) they found the inflammation in my back by luck during a CT scan to see if I had appendicitis(which I did not) after finding out I was HLAB-27+ I was sent to my rheumatologist who did not believe I had AS, until she saw the images of my back and started me on treatment immediately. I have been on humira and many different anti-inflammatorys, I’m currently on my third month of embrel and waiting for a cortisone shot and trigger point injections which bring little to no relief. These past two years(well past 20) have been difficult but I’m attempting to look at each day as a learning experience and be positive. I’m still working because it’s becoming evident that one day I won’t be able to, I try to make it to the gym twice a week even if it’s just to walk on the treadmill. My latest test results showed no improvement so it looks like remicade is the next step for me. I have been told by several doctors at a different hospital that it’s all in my head, and I honestly would like to kick them in theirs, in sharing my story because no one understands what this is like. Every day is getting worse and the fatigue is overwhelming me, I was barely able to move today because of my hips and knees but still had to work two jobs. I am thinking about getting a second opinion treatment so if anyone knows of a great doctor in Boston please let me know!
Thank you and stay strong!
-Brittney

Massachusetts, United States of America

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5 Responses to “A.S. Face 1174: Brittney”

  1. Dear Brittney,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. hey, I know exactly what you are going through as I am 23 almost 24 and have spent years in the doctors office an didnt find out until after i was sick with bronchitis for 3 months that I was HLA-b27 pos and have ankylosing. I would love to know who you see as a rhuemy mine will not give me an MRI and my pain is so muh worse these past couple years I am not on any mediction because of allergies and I get sick too often they wont put me on any. I grew up in Mass and currently live in New Hampshire. It is ao good to know about some one around my age that lives in mass! Good luck o you Hun I hope everyhing works out ❤

  3. Hi! Sorry I took so long to respond, I see Dr. Vaylil at Beth Israel deconess. She’s great, but I find she doesn’t listen to me so I’m looking for someone new at mass general. I would start there, even google the best rheumatologist’s in Boston, the woman I’m hoping to see is ranked #1. I hope you can be close to pain free soon!

  4. I am currently a healthy medical student. praise the lord that im still alive. i have had faced the same probs just like u 2 years back when i was still a foundation student. i cant sleep cant walk to class…and cant even stand..i loss almost 10kg due to bloating stomach and lack of sleep. later a rheumatologist prescribed me NSAIDs to reduce the pain. so i continue taking Celexocib for few months..there are some studies and articles that has proved the efficiency of NSAIDs in controlling the body inflammation in case of ankylosing spondilytis(A.S).and right now im totally free from the agony of A.S. most importantly u have to pray hard…do not stop believing sis.for Jesus is a great God.

  5. God bless you Brittney! The poster of House is my favorite and so true .Take care of yourself and hope you find the perfect health care team. Hugs x

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