A.S. Face 1051: Jerrie Hall

Face 1051Hi my name is Jerrie Hall. I live in Colorado. I’m 46, happily married mother of three amazing kids.
I was diagnosed with A.S. October 8, 2013 after many years of unexplained pain. It all started in my 20s when I had low back pain. As a hairdresser, I would think my back pain was due to my job, being on my feet all day and leaning over the shampoo bowls. After I had my kids it got worse. I had a MRI on low back and said I had a small issue with my L5-S1 disk. Then tendonitis on my left thumb(non-cutting hand) and tennis elbow. Major female pain and problems that lead to a hysterectomy. Both knees scoped due to meniscus tears not knowing how it happened. I always had neck pain that eventually generated into right arm pain, tingling and numbness in thumb & index finger. I had a MRI that resulted in two disks removed and fused with a titanium plate with 6 screws. After that it was a downward spiral. Multiple ER trips with excruciating pain. All the doctors would say nothing is wrong. I felt like I was CRAZY. I could no longer hold a job and I was extremely depressed. I received a steroid shot in my SI joint in May that was amazing. That is when my new doctor ordered some blood tests. They came back with high inflammatory levels and HLA-B27 positive. I was then sent to a rheumatologist that knew exactly what was wrong.. That was a little over a week ago. He has put me on Meloxicam 7.5mg twice a day and Enbrel once a week which I just started two days ago. I’m hopeful that the Enbrel will help. The meloxicam has helped with the inflammation. I still have quite a bit of pain. I don’t know any body with this disease and I feel all alone. I am some what relieved to know I’m NOT crazy, but at the same time, I’m very scared. I would love to be able to correspond with someone that understands what I’m going through. Thanks for reading (listening).

Colorado, United States of America

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5 Responses to “A.S. Face 1051: Jerrie Hall”

  1. Dear Jerrie,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Your not alone! This community is amazing – there are lots of groups on facebook, join one or some, you will have an immediate “family” that will always be here for you!!

  3. Sorry you have had such a rough time Jerrie, hopefully by you reaching out, you will get to talk to others just like you that thought they too were crazy. Love you

  4. Welcome Jerrie!

    You are definitely not alone, as evidenced by this website! There are a lot of great AS forums and sites you can join, too. I am a member of kickas.org, and it’s great! You can post your HELLO on there, and you’ll get a lot of responses from people who’ve been going through what you’ve been going through for a looooong time.

    Pinterest also has some great boards you can follow. Just go to Pinterest.com and search AS or Ankylosing Spondylitis and they’ll come up. And, of course, there’s Facebook! Just search Ankylosing Spondylitis and you’ll find all kinds of groups and pages.

    It is very difficult to explain to family and friends what you’re going through; they just can’t understand if they can’t physically feel what you do. So take heart, hold your head high, smile through whatever it is you’re going through on any particular day and most of all, READ, READ, READ. You will find many sites that talk about diet, drugs, support, etc.

    I joined Kickas.org a while back, and through reading and research, I decided to go drug-free (with the exception of an occasional Advil), changed my diet to Paleo and am now seeing a great Chiropractor, who knows what I’m dealing with.

    I wish you luck, and hope to see you on some of those forums!

    Best,

    Ina
    (Face 889)

  5. ___123___A.S. Face 1051: Jerrie Hall | The Faces Of Ankylosing Spondylitis___123___

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