A.S. Face 1043: Luke

Face 1043Luke I have suffered from Ankylosing spondylitis for around 3 years now, at first I didn’t know I suffered from the condition until I went to the doctor as I was suffering from pain around my groin area, I had been for numerous Mri scans and the consultant told me that it was growing pains, I burst into tears as I knew it was something more than that , me and my mum had been looking online and at numerous leaflets and all the side effects which it said in the leaflets I had.

It was really hard at school as no one knew about it but me , and when I was telling people that I was feeling unwell , they would all start to say things to me , I felt as though I had no one to talk to and I felt alone I became depressed as I were looking online at all the worst things that could happen to me , it was a really tough stage in my life.
From that point on I knew in myself that something had to change and it did , I went back to the hospital for more Mri and CT scans and then after that I had been told that I suffered from Ankylosing spondylitis.
Then the treatment started , ever since then I have been taking naproxen twice a day and once a week I am having methotrexate injections at home which my mum is taking for me , following folic acid 2 days after. I am still getting a lot of pain and discomfort everyday but the thing is now I have become anemic so now I am having to take medication for my iron levels as well.
Ankylosing spondylitis has also effected me in other ways like I am no longer able to dance which I used to love doing, also trampolining and running now I am unable to take part in any sport and I am unable to have a great social life , that is why I just stay in , I hope you have found this helpful hearing my story on my life with AS.
Yours sincerely
Luke
England, United Kingdom

5 Responses to “A.S. Face 1043: Luke”

  1. Dear Luke,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Thank you Luke for your story… Be brave young man for you are not alone. Some days it may feel that way but on those days just look down at your awareness bracelet that cookie will send you and realize there are so many people that know “exactly” how you feel. We all know what it feels like to not be able to do some of your favorite things. I know it’s not the same but look at it this way… you can always find new and exciting things to do. Tell yourself that you have been given an opportunity to learn something new.. like painting, singing, sign language, crocheting or knitting… the options are endless. I will keep you in my prayers and on those “not so good days” that I have I will think of you and your story to cheer me up. Sending you a big A.S. HUG!

    Donna Brelinski 0926

  3. I’m with Donna Luke. There are always silver linings. Now you can shape your life around AS….rather than having AS shape you. It is better being diagnosed now…rather than after you’ve finished college (and you ARE going to college) and after you’re well into a career. It sucks not being able to do things we once did…but I believe that when something is taken away…something else is given to us to replace it. You have a gift…find it…and throw yourself into it…and channel your AS frustration to make you the best at it. Get “revenge” on AS by being the best you can be. Somehow…I sense…that you’re gonna be A OK.

  4. Hang in there Luke – You will find a combination of meds and activity that will work for you. You will work around this and find a way to do other things you love – You sound like a very strong, educated, and caring young man. You have alot of pluses going from you – I can tell just from your story – Kick AS!!

  5. Stay strong luke i give u all my love

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