A.S. Face 0983: Dawn

My name is Dawn and I have had A.S. symptoms since I was 16 years old. I have been to numerous doctors before one doctor 15+ years later decided to check me for the HLA-B27 gene. I was told that it was psychosomatic. Like many others I have problems walking at times, sitting and or standing for long periods of time. Sleeping is horrendous for me and well mornings are indescribable. I also suffer from bouts of depression and anxiety. Food and I do not get along very well, I have to take chlorestamine to keep food inside me. I was on Enbrel for approx. 1 year before it stopped working and now I am on Humira and fingers crossed it will continue to keep the edge off. I also am on the Duragesic/Fentenyl Patch. I am now 39 and I am not sure what the future holds for me. I hope one day someone will find a cure in my lifetime.

Dawn

Ontario, Canada

6 Responses to “A.S. Face 0983: Dawn”

Dear Dawn,
Thank you so much for sharing your story with us.
Sincerely Cookie

Cookie Has A.S. said this on September 8, 2013 at 5:55 pm | Reply
Thank you Cookie for doing this

Dawn said this on September 10, 2013 at 10:25 pm | Reply
- My pleasure!
  
  Cookie Has A.S. said this on September 11, 2013 at 8:07 pm | Reply
You are such an amazing person Dawn Dawn, always a smile on your face. Through your toughest days you have always been a shining star. Sharing your story will help someone else who is suffering, and you can help them see the good from the bad. You have the kindest soul xo

Andreana said this on September 10, 2013 at 11:17 pm | Reply
Hi Dawn,
So sorry for your pain – all sufferers. I too have lots of digestive issues, including ulcerative colitis. Wondering about your Rx for chlorestamine and how it was prescribed for your digestive problems and if would help me – what I read about the Rx is that it treats high blood pressure. How does it help your issues. What type of doctor perscribed it for you?
Thank you. One day at a time!

Ann said this on November 28, 2014 at 4:28 pm | Reply
- Hi, sorry for the delay… I forgot people could leave comments lol oops… I went to an internist for the chlorestamine. I was having problems eating and keeping food inside me. I would be chained to the washroom anytime I put food in my mouth with horrible cramping… This seems to have calmed down the cramping quite a bit and I can eat without being 3 feet from a washroom
  
  Dawn said this on May 13, 2016 at 10:21 am | Reply

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