A.S. Face 0938: Lucy Staub

Face 938lucy zfjI have wanted to do this for awhile now…I still don’t really understand everything that it going on with my body. I was diagnosed in February, right after I lost my job…go perfect timing! Lol I am 51 now and when I think back the first time I remember was when I was 13 years old. Out of no where the pain to my lower back took me to my knees. I was a tom boy growing up…played football, kick the can, basketball, softball, feild hockey…pretty much any sport. I was always in the E.R. After awhile, my mom didn’t even need to give my name…they saw me coming and pulled out my info. After I had my second child I was simply walking and some how the main bone in my foot broke. From there my body really seemed to hate me more and more each day. I always have pushed myself passed the limit and have payed later but I always felt like I must be crazy…the doctors never found anything “wrong” with me and after awhile…they didn’t even examine me. They would push meds on me for pain and muscle relaxers. Thank God I’m not the type to pop pills just cause…but I will be honest…I’m not to sure Iam happy to have actually got a diagnosis, no one has really been able to explain to me what’s going on or what to expect and other then giving me drugs, no one has given me options about what else I can do. I’ve not been given any options other then different meds. Sorry…I dislike whinning!
I have decided though that whatever is going to happen and is happening…I’m not going down without a fight! I am alive…good bad or ugly…I DEFINE MY A.S. IT DOES NOT DEFINE ME! I would like any info., hints, suggestions, I can get. I live in a very rural area which makes it that much harder…God bless all of us for we WILL continue go on! 🙂 ♥
Maryland, United States of America

3 Responses to “A.S. Face 0938: Lucy Staub”

  1. Dear Lucy,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Well Lucy…listen to your body….BUT don’t listen too much! I had a doctor tell me once that “fixating magnifies pain,” and it’s easy to focus on this spot or that spot. In our search to “understand” we tend to examine minutely every pain…but that’s counter productive. I’m sore if I walk too much but I’m sore if I lay on the couch too much…but there is a “sweet spot” of mobilization. I refinished a desk a couple years ago…up and down and bend around…and I worried “oh oh…this is gonna kill me”…but Instead I felt great.

    I assume you’re starting some of the zillions of drugs to treat AS. If one doesn’t work…tell the doc and try another. This blog is full of stories about how one drug didn’t work…but another did. And this might not go over too well with others…but you do get somewhat “used to it.” My worst times were when it “really flared” ten years ago…because you realize your not going to be young again. Back then I asked a friend of mine who has had horrible RA since high school, “how do you live with this.” He just smiled and said, “it becomes an old act…you get used to it.” Time will heal your soul.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: