A.S. Face 0899: Kimberley May

Face 899

My name is Kimberley May, I’m 30 years old and I’m from Devon, England.

For as long as I can remember I’ve had a “bad back”. I couldn’t ride a bike when I was younger because it would make my back ache. At age 13, after I complained of back, hip and leg pain, I was diagnosed with sciatica. I didn’t realise at the time, but this diagnosis would ruin any chance of further tests or examinations. Everytime I went to the doctor searching for help for the excruciating pain in my hips and legs, I was told it was the sciatica and sent on my way.

I would wake up in the middle of the night in agony, my back seemed to be in spasm, my ribs felt like they were in a vice and my hip hurt so much that I couldn’t lift my leg up. By the morning, I would be more or less ok.

My fiance urged me to see yet another doctor and finally after years of asking for help, I saw a GP that took me seriously.

I was sent for x-rays which showed inflammation in the thoracic and lumbar spine and fusion of the sacroiliac joint…I finally had a diagnosis, a genuine reason for all the pain and exhaustion I was feeling.

Being told that I have ankylosing spondylitis has helped me, it hasn’t eased the physical pain or the debilitating fatigue but it has given me a new outlook on my life, yes I might have to adjust my dreams and expectations but at least I am believed and I’m not left to face the agonising dark nights alone, wondering if I’m going mad or have a terminal illness.

England, United Kingdom

4 Responses to “A.S. Face 0899: Kimberley May”

  1. Dear Kimberley,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi Kimberley,

    Thanks for telling your story.
    What do you do to manage your pain? Which medication do you take?
    I am from Yorkshire, tomorrow is my one year on LDN anniversary , it works a treat, it was like a miracle the pain went away after the very first dose. I’ll be celebrating the day when I found a solution to my problem.

    All the best


  3. I started reading the ‘faces’ at no 1 and read too 13. I have skipped to 899 and the story is the same. Pain. Not being believed. Not getting help. infections and antibiotics. This is my story too. What is wrong with doctors??? a monkey could diagnose AS! Yes it’s not that common but it’s not unknown either. Sorry, shouldn’t be angry. Just worry that people are still out there suffering like I did for twelve years and not getting help. No, I should be angry. I am raging. To hell with medical ‘professionals’ making a cushy living from an overpaid sinecure. We will do it for ourselves

  4. Hello Kimberley !

    Thank you so much for sharing you story . I understand the hip pain & back pain . I too have had this since a young age as I see you have suffered without knowing what the problem was , I’m so sorry ! It is a blessing to have a loved one help . Very happy you have someone 🙂 I have been reading a few stories tonight & I can’t sit up anymore but wanted to welcome you to and let you know you can share vent anytime you need to ! Everyone is very nice and understanding . It was one of the best thing’s I did finding Faces Of A.S. Sometimes are loved one’s don’t , can’t understand & we need another A.S. suffer to talk to . If you ever find yourself there you are welcome to message me …..
    God Bless You ! Kristy Cowan A.S. Face # 732

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