A.S. Face 0898: Dillon

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It all started in September 2006, Dillon, age 8 broke out in a weird rash.  It started on his chest, then went to his upper arms.  I took him to the walk in, told it was an allergic reaction.  By the time we got home, it was on his back and neck.  Went to the emergency room, put in a contagious room, three doctors later, no one knows.  I took pictures, and the next day got him in to see his pediatrician.  The rash was gone, but I showed her the pictures and she knew what it was.  Dillon was sent for blood work and we got the call 3 weeks later, Dillon is HLA B27 positive.

When Dillon was younger, we were always told it is “just growing pains”, one day he would be fine, the next he couldn’t crawl.  By the time he could walk, his knees were so swollen.  He couldn’t grasp things with his hands and was very clumsy.  When Dillon was a year old, his dad was diagnosed with Ankylosing Spondylitis, he was 31 years old.

Since Dillon’s diagnoses he has been in and out of the hospital for joint and stomach problems.  His diagnoses at age 8 was enthesitis related arthritis.  By the time Dillon turned 16, the rheumatologist added the diagnoses of enthesitis related arthritis with sub type Ankylosing Spondylitis, he has also be diagnosed with Uveitis.  Dillon just started Humira to his medication regiment.

Dillon is not a typical 16 year old boy, his last flare up lasted 103 days!!  A third of a year!!  Dillon attends high school, and he is going into grade 11 this year. Dillon also plays on the school drum line.  Dillon has an older brother and a younger sister (who is also HLA B27 positive) luckily it isn’t active.

Ontario, Canada


4 Responses to “A.S. Face 0898: Dillon”

  1. Dear Dillon,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Damn…the courage of the young, strengthens us old AS’ers. There’s always a silver lining. And the silver here is Dillon can now adjust his “career” future to his AS, rather than have the AS destroy his career if he would have been diagnosed in his 30’s…like so many of us. I’m thinking something in the medical field??? Praying for the Humira. I’m sure it’ll work.

  3. Thank you for sharing your story of your son and family. I am face #770 and a single Mom of four young men. Three of the four are HLA B27 positive and my third son is the only one active with AS. My son Joel started showing signs when he was three years of age. He also has chrons disease as well. It’s been a roughroadfor my son and I but we both stay happy and positive. My son has not been in regular school since the half of 7th grade. He just turned 17 and is a junior in high school. Very bright and I admire his strength. I definitely will keep your family in my prayers. I feel for everyone who has AS, But when our children get sick, it’s always different. Sometimes I would put blame on myself for him being sick but I know that there was nothing I could do to prevent it and I learned to accept it. You’re doing a great job Mom and I want to thank you for sharing your story.

    Much love and God bless,

    Rosealie AS Face #770

  4. Greetings Dillon’s Mom,
    I acquired AS from a former fiance’ (no family history) but I had to have had the genetic marker. It didn’t become active until after my son Trevor’s birth. My son was diagnosed at age 10 when he told me that his back hurt to crawl around the jungle-jim. I took him to the pediatric clinic, got a P.A. who did an x-ray, when I saw the radiologist’s report, I recognized the same wording as mine in the early stages. When I mentioned it, I was brushed off and shown the door. I went to the front desk and demanded to speak to the chief of pediatric’s! He showed me into his office and agreed to run an HLA-B27 test which came back +. I immediately started researching alternatives to drugs that just treated the symptoms and stumbled upon antibiotic therapy! Soon after my son had abdominal surgery where they gave him Cephalosporin I.V. & 10 day oral. His AS went into remission for 3-mos! I then put a report together summarizing my research with source info. I then presented it to his pediatrician &Greetings Dillon’s Mom,
    I acquired AS from a former fiance’ (no family history) but I had to have had the genetic marker. It didn’t become active until after my son Trevor’s birth. My son was diagnosed at age 10 when he told me that his back hurt to crawl around the jungle-jim. I took him to the pediatric clinic, got a P.A. who did an x-ray, when I saw the radiologist’s report, I recognized the same wording as mine in the early stages. When I mentioned it, I was brushed off and shown the door. I went to the front desk and demanded to speak to the chief of pediatric’s! He showed me into his office and agreed to run an HLA-B27 test which came back +. I immediately started researching alternatives to drugs that just treated the symptoms and stumbled upon antibiotic therapy! Soon after my son had abdominal surgery where they gave him Cephalosporin I.V. & 10 day oral. His AS went into remission for 3-mos! I then put a report together summarizing my research with source info. I then presented it to his pediatrician & his pediatric rheumatologist. The tested him with a 3 day regimen of keflex, he went into a short remission. The end result was 5-yrs of Keflex. twice daily with very little AS problems. At age 21 his new rheumatologist was surprised at the little amount of fusion and damage from his AS. He has never been on anti-inflammatories or had uveitis which is most prevelant in mid-teens.
    I hope this may help your son.

    Tessa/Georgia, USA his pediatric rheumatologist. The tested him with a 3 day regimen of keflex, he went into a short remission. The end result was 5-yrs of Keflex. twice daily with very little AS problems. At age 21 his new rheumatologist was surprised at the little amount of fusion and damage from his AS. He has never been on anti-inflammatories or had uveitis which is most prevelant in mid-teens.

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