A.S. Face 0877: Sharon

Face 877 SharonMy name is Sharon. I am 33 years old and I was officially diagnosed with Ankylosing Spondylitis 2 months ago although I have been probably living with it for 30 years. My journey started 6 months ago when I had a very bad flare up and was in and out of the hospital. I had sever toe cramping and muscle spasms and very sever lower back pain ( My SI joint). It was and still is so inflamed it’s actually protruding out from my body causing the sever pain and inflammation. The hardest part about my journey with AS is watching my 3 year old son suffer as sometimes I just can’t take him to the park or run around the house playing silly games with him. I am looking forward to getting more effective treatment after seeing my specialist in October. The waiting list is long but it will be worth it. Thank you for listening to my story. I’m glad to be able to connect with people with AS from all over the world.

Canada


7 Responses to “A.S. Face 0877: Sharon”

  1. Dear Sharon,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. I’ve said it before Sharon…and I’ll say it again. I think the “best kids” are the kids of AS’ers. I’ve seen it. Your son now gets to learn the lesson of compassion, patience, love and understanding. I think the world could use a lot more of those…don’t you? Those lessons will serve him for the rest of his life.

    good luck with your appointment…and be patient yourself….but I have no doubt that you’ll find relief.

  3. Hello Sharon,
    To me the hardest part of AS is not being able to play with your children as “normal” people would. However, I have found I can interact with them by playing board games and doing crafts with them or by simply snuggling and watching a movie.

  4. Hey, Sharon. My kids are teens now, but one thing they’ve learned along the way is how to be compassionate, how to ask themselves what might be bothering someone else. They know from watching me that sometimes illness or trouble is invisible. None of this is your fault.

  5. Hi Sharon,
    if there are days that you feel normal, try doing Heated Yoga, ever since i started doing this Bikram yoga ( Heated Yoga ), I never feel any pain anymore.
    Guy 36 yrs. old

  6. Thank you for the wonderful post,Sharon! I too think I had this disease for years before diagnosis. After severe sympotms started around 1999, I was not diagnosed till 2005!!Have been on Remicade since then and oral Arava.
    I am sending this to my family and you gave me a wonderuful explanation to help me explain to myself why I cannot do for my grandchildren what I would love to do and.
    The guilt with these type of diseases is very real!1
    Hope you continue on your road to relief and hope you will find pain relief. A pain management doc is something you might consider. He is my best friend!!!

  7. Who is the specialist you are going to?

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