A.S. Face 0835: Brianna

Face 835 Face 835a

I recently got diagnosed with AS and have the HLA B27 gene present. I am only 16 years old and AS has affected my life in so many different ways, every day has been a struggle and all of the people that have had it for many many years truly inspire me. Not many people know what it is or how it feels so to finally find a support group has really motivated me and given me hope that my life hasn’t ended. Hopefully AS won’t take over my life and we can all soldier on!

Brianna

Perth, Western Australia


6 Responses to “A.S. Face 0835: Brianna”

  1. Dear Brianna,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Welcome tot he group Brianna!! and thank you for sharing your story,. NO, it isn’t the end of the world, good you’re young when they found that you have it. Now is the time to walk tall and be given good advice and medications to help you along your A.S. journey. I have found hundreds of loving friends in this group, and Cookie, well she’s our Leader and she’s done a fantastic job in getting our stories out there on the internet for more awareness. We all love Cookie!!! By the way I am face # 0008
    Welcome to the group and wishing you a pain free day!
    Hedy

  3. We are identical Brianna, 16 diagnosed, I’m 52 now…yeah it’s been quite a ride, but each day starts and ends with saying, ” someone out there is blind or has Terminal Cancer”, you are lucky to have AS !!! I’m allergic to Wheat and Gluten and if I would have known that 37 years ago, I could have starved this disease ! You can, and I hope you do, you have so much love to get and receive, and nothing is better than breathing and loving. Stay strong and know that you can do this…it’s worth…take my words Brianna.
    Love
    Steve Mieras AS 801 face.

  4. Thank you for sharing your story beautiful Brianna!! And yes, we are all soldiers fighting AS!! Welcome aboard lil sister. I am face #770 God bless you!!

  5. Hey Brianna!

    Welcome :). I’m Andrew, Face 0096. I recently had a mini-documentary shot about me and my life with AS (link below). It helps a lot with explaining what AS is, and how it makes you feel, to your friends and family. I hope it helps!

    Regards,
    Andrew
    @hiddenbicycles

  6. AS won’t take over your life Brianna, but you can use it to shape your life. Use it to turn a negative into a positive. Use it to dedicate yourself to a cause. Use it to shape your career. Use it to be kind to others.

    PS–love the video Andrew!

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