A.S. Face 0825: Rudychen

Face 825

My name is Rudy, I live at Indonesia, Jakarta, i have AS and just found out this year,  i am a member on SAA too.

After struggling to live with this pain and to find out as many information about this AS as i can, i must admit there is not much information here in my country, they all offered the same answer , just like  most person  who comment about AS, which is enbrell and humira to reduce the pain and stop this agony. as i just found out and just did the HLA-B27 test, and i am positive and x-rays shows that too.

Indonesia


4 Responses to “A.S. Face 0825: Rudychen”

  1. Exercise…stretch….manage your meds very carefully…rely on the Good Lord…..peace……stay strong mentally and physically..

  2. Dear Rudychen,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  3. Rudy…as I read the FACE’s today…I was touched that your story was “surrounded” by the stories of “veteran AS’ers”. AS I mentioned on Dans post, most of us old farts weren’t diagnosed until way into our “lifes challenge,” but today it does seem the detection is getting earlier. And that is key. And man, I’d be thanking my lucky stars that today the Rhuemy has so much meds to choose from than 25 years ago. Good meds. Meds that’ll pile on the damn AS before the damage can be done. So you see…you have every reason to be optimistic about your treatment…and every reason to be optimistic about your future. These “biologicals”, like Enbrel…were a HUGE breakthrough step…and that only portends bigger Breakthroughs in the future. You know it to be true.

  4. Hello, yes, thank you for all your support, as i just aware of this recently, it brought back my memory around more than 12 years ago when i had my first terrible back pain which i dont know why, and nobody does either (i mean in my family), and during that time the doctor that i went to just said i am lack of vitamin B, and hit my knee several times to check wether its stil working properly or not, gosh that silly, but i must admit during my 20 years of age i dont know anything about any disease that would hit me, i never imagine and never expect as i am so naive that being a teenager is free from such thing. and during college in beijing i had several attack already but i didnt realize and dont know either.so i keep doing what i am doing, but thing has changed recently as this is getting worse and i finally found the problem,now that i am happy to found out about whats going on on my body and sad to read so much about this disease that incurable. but this AS awareness thing is helping me a lot to find many information as i need, and yes thank you to technology that made us connected. and we can share everything. .i hope i can stop this before its worsen. i am here same as anybody else and thank you Cookie for giving me this chance being here with all the supportive people. i know there is no cure, but at least we know what we are dealing with and hopefully we can control it for a better life…

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