A.S. Face 0816: José

Face 816Jose 1 Jose
This story is in English and Spanish

Esta historia está en Inglés y Español

Mi nombre es José Berrocal Espinosa y tengo AS.

Mi dolor empezó cuando yo estaba a punto de cumplir 20 años. No podía dormir por la noche durante varios años. Mi doctor me dijo que tenía que visitar el traumatólogo. Tuve algunas radiografías y el médico me dijo que tenía lumbago, pero después de 5 años, mi dolor era muy malo. Me decidí a ir a Barcelona y visité un reumatólogo allí, él fue quien me diagnosticó con AS. Yo estaba muy abajo, en ese momento, no había ningún tratamiento para la EA, pero seguí trabajando. Cuando tenía 40 años, yo no podía seguir más, hablé con mi jefe, yo trabajaba en un taller donde se reparan los neumáticos, había otros dos trabajadores también. Yo estaba a cargo de la misma. Había estado trabajando allí durante 12 años, pensé que el jefe y yo éramos buenos amigos, pero cuando le mostré el informe médico, me puse en shock, porque él me dejó de hablar, leyó que no podía hacer actividades pesadas más. Cuando un neumático pesado necesitaba ser reparado, el jefe me dijo que tenía que hacerlo. Finalmente dejé de trabajar allí y acaba de conseguir 12.000 euros y hoy en día sólo tengo 700 Euros a la izquierda. Durante un montón de polillas me deppressed. A veces me siento muy mal y hacia abajo. A veces tengo pensamientos que realmente me hacen sentir mal. Esta es mi historia. Puedo decir que sólo los que tengan por saber cómo nos sentimos realmente, porque a veces ni siquiera su propia familia nos entiende. Ellos piensan que sólo estamos buscando cosas que quejarse, es por eso que nosotros, como familia, saben cómo nos sentimos realmente.

Besos y abrazos

Jose

My name is José Berrocal Espinosa  and I have AS.

My pain started when I was about to turn 20. I could not sleep at night during several years. My doctor told me I had to visit the traumatologist. I had some x-rays and the doctor told me I had lumbago, but after 5 years my pain was really bad. I decided to go to Barcelona and I visited a rheumatologist there, he was the one who diagnosed me with AS. I was really down, At that time, there was no treatment for AS, but I continued to work. When I was 40, I could not continue any more, I talked to my boss, I used to work for a workshop where tires were repaired, there were other two workers too. I was in charge of it. I had been working there for 12 years, I thought the boss and I were good friends, but when I showed him the medical report, I got in shock because he stopped talking to me, he read I could not do heavy activities any more. When a heavy tire needed to be repaired, the boss said I had to do it. I finally stopped working there and just got 12,000 Euros and nowadays I just have 700 Euros left. During lots of moths I was deppressed. I sometimes feel really bad and down. I sometimes have thoughts that really make me feel bad. This is my story. I can say that just the ones who have AS know how we really feel because sometimes not even your own family understands us. They think we are just looking for things to complain, that is why we, AS family, know how we really feel.

Kisses and Hugs

Jose

Spain,


2 Responses to “A.S. Face 0816: José”

  1. Dear Jose,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

    Querido Jose,
    Muchas gracias por compartir tu historia con nosotros.
    Sinceramente Cookies

  2. Jose, your story is so powerful… My prayer is that you will continue to take care of yourself… It does not matter how others see or feel about you… At this point in your life, it is only you an the AS to battle with and with those two, nothing else should matter… Keep your head held high and look to the hills, for this is where you will find strength.

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