A.S. Face 0807: Amy Millios

Face 807My name is Amy Millios….I am 36 and live in Andover, NH.  A year ago last May I was diagnosed with AS, and life has certainly been challenging.  After many years in human services, and almost as many in IT, I can no longer work and have joined the ranks of the disabled.  But I’m hoping this is temporary.  While I work to develop an optimum diet and exercise routine, I am also planning to apply to graduate school.  Each day is precious and I continue to discover what is most important to me.  I do get discouraged at times at what I can no longer do, what I used to be able to accomplish with ease, but I do my best to not focus on it.  I choose instead to focus on the possibilities.  A former teacher and mentor gave me a poem awhile ago that helps me in this…it’s by a poet named Kay Ryan, entitled

“Patience”

Patience is
wider than one
once envisioned,
with ribbons
of
rivers
and distant
ranges and
tasks undertaken
and finished
with
modest
relish by
natives in their
native dress.
Who would
have
guessed
it possible
that waiting
is sustainable–
a place
with
its own harvests.
Or that in
time’s fullness
the diamonds
of
patience
couldn’t be
distinguished
from the genuine
in
brilliance
or hardness.

New Hampshire, United States of America

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7 Responses to “A.S. Face 0807: Amy Millios”

  1. Dear Amy,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Amy, you are wonderful – fight the good fight! We’re from Vermont and my husband was just diagnosed with AS at Dartmouth this year. We, as you, are blessed to live near such a good hospital. -the Vermonters

    • Hello Vermonters!
      Thank you for reaching out….yes, we are blessed to live near such a good hospital. I’ve also come to realize just how special, warm and welcoming, the AS community is….each person I’ve met who is fighting the battle ((along with their families) are some of the most extraordinary I’ve met. Another positive takeaway I suppose in an otherwise often frustrating set of circumstances. Hope your husband is hanging in there (and you too!)
      –Amy

    • Hello Vermonters!
      Thank you for reaching out….yes, we are blessed to live near such a good hospital. I’ve also come to realize just how special, warm and welcoming, the AS community is….each person I’ve met who is fighting the battle ((along with their families) are some of the most extraordinary I’ve met. Another positive takeaway I suppose in an otherwise often frustrating set of circumstances. Hope your husband is hanging in there (and you too!)
      –Amy

  3. We all just have to hang in there and trust and hope for the best… Keep your chin up!

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