A.S. Face 0732: Kristy Cowan

Face 732

Hello ! My Names is Kristy and I was diagnosed with A.S. in at the age on 14 in the year 1989 . I had never really been able to keep up with the other kid’s and was a very sickly child since birth with alot of stomach problems that keep my in and out of the hospital  .Never could run & jump as fast or high as other kid’s . In 1985 one day my left knee started hurting & everyday it got worse & worse . With in one months time I went from being normal to screaming in pain . My leg’s were shriveled up to my chest almost & unable to walk move at all from hip’s down  . My Mom took me to the Doctor & they did x-ray’s of my knees first . They were fractured but nothing that would have caused that much pain and the symptoms I was having . So they did x-ray’s on my hip’s , pelvic area . My Hip’s were gone ? Piece of my bone in the pelvic area was sticking in my bladder . i had no reflexes in any part of my body , fever . It was bad and they had NO clue what it was or what to do ? So they did a double hip replacement and with the bar’s down my femur , bone grafts and they fixed my bladder. Let me tell you at the age on 11 to have all that surgery at one time was dumb & they thought I may not make it cause everything went wrong it seemed like. The Doctors should have know better ! I spent over a year in the hospital . They ran every test they could think of to find out what I had . Finally 4 years later with a wonderful Doctor William Head of Dallas Tx, he found out I had HLA-B27 & A.S. I have been tested 6 times with other doctors because they say only Men can get it lol ! So sick of hearing that . Plus  knowing more about A.S. than most doctors ? Crazy !!   Dr. Head retired 😦  He did surgery on me  & I was able to walk for the 1st time in 4 years 🙂  Now at the age of almost 38 . I have had 16 hip replacements . Last one was 7 years ago and I need both hip’s replaced again now & a knee replacement , bone graft’s  😦 The cr@p never ends let me tell you !   I was thankful that it effected my hip’s knees , ankles and not so much my back . I have scoliosis, osteoporosis ,  that has gotten much worse . About 11 years ago the A.S.  started effecting my back much worse  . Now I am unable to sit for more than an hour without having pain so bad I can’t take it ! I can only walk , stand for 5-20 min. If I take my pain killers & muscle relaxers I can stand for an hour 🙂 sometime more with my walker ?  My story is so long and this is just a small amount of it . I also have alot of stomach problems IBS . My goals are to do everything I can to stay as healthy as I can & in a good frame of mind ! As everyone knows that has A.S. everyday is different . Also ever person with A.S. is different with symptoms .  I can’t plan trip’s , dinners on & on because I don’t know if I will be able to get out of bed or what my pain level with be ? It’s day to day hour to hour & sometime min. to min. !  I want more than anything for a cure ! I have only met 1 person who had heard of A.S. & 1 e.r. doctor ! We have to get the word out to everyone ! AWARENESS IS THE KEY TO FIGHTING THIS & FINDING A CURE !! Every time some one ask me why I’m in a wheel chair or if I’m just talking to people in doctors offices ext, I tell them all about A.S. !

Sometimes my depression over takes me . Being I just moved to a new city & state I have no friends here . The friends I do have where I moved from don’t understand . I would love to have just 1 friend to talk to about this that has A.S. ! Please if anyone else feels like they need a friendly ear someone to talk to about what your going through please contact me !

My e-mail is kristybear777@yahoo.com .  Thank you for taking time to read my story

California, United States of America


6 Responses to “A.S. Face 0732: Kristy Cowan”

  1. Dear Kristy,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi Kristy!! You…my lady…are one spunky gal! You….are an inspiration to me! you…are a hero in my book. I love your optimism…I sense infectious optimism. I think you should turn a negative into a positive…and share your encouragement with future FACE’s. I sense you would uplift people with your spirit.

    God bless you.

    Derek

    • WOW ! Thank you so much for those kind words ! I could cry .. but the happy tears 🙂 May God Bless You As Well Derek !

  3. I haven’t been on much being busy & all but I never forget about the stories I have read & I pray for my fellow A.S.Warriors ! I will catch up & be more involved .

    As of now I have been having good & bad day’s but have wonderful support & that’s the best medicine and lot’s of laughter lol ! Faces Of A.S. is such a blessing ! Cookie you are a trooper and all round wonderful soul ! I have met other A.S. friends as well ! Thank you Cookie and I still plan on making my story so it can be understood better . I have been working on it when I have time here & there .

    May God Bless You All ! Kristy

  4. Omg..I have been searching for you all thru Facebook.. Please call me girl..my number is 936-225-1961..I would love to talk to ya

  5. Kristy, my story is (well my life/pain) is pretty horrific as well. I went from a normal person to completely debilitated in 4 months. I too have no one to really talk to. I lost my best friend, and I have only a few friends to talk to and I am always cancelling on them. They do understand luckily. Anyway, request me on Facebook and we can talk. I would love it too. Thanks Charlene Liuzzo Bedford.
    God bless!!!

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