A.S. Face 0673: Anna

I am 33 and from Worcestershire, UK. My symptoms started when I was pregnant with my first child three years ago. Doctors dismissed my symptoms as spd/pregnancy related but I always felt it was something more. It started with my left SI joint, it was always inflamed and painful, upper and lower back pain,  then came the morning stiffness. That symptom none of the doctors could explain!! After I had my baby and things didnt settle down I pushed for them to do tests or something, anything to find out what was wrong with me. By this time I felt they were giving up on me so I started doing my own research. I had tried so many painkillers, nsaids, muscle relaxants, seen physios and chiropractors, tried accupuncture and nothing gave much relief! I googled morning back muscle stiffness expecting hundreds of ailments to come up but actually there was only a couple! I read about AS and for the first time in three years I felt relief and hope! I knew that I had AS!! I went back to the doctor armed with my new information and the first thing they said to me was “you are a woman so it cant be AS”. Unbelievable hey?! I saw two more doctors and they all said the same thing!! After much pushing by me they eventually did a back xray and mri. They showed degenerative disc disease and bulging discs but no signs of fusing yet. Based on severity of symptoms we have agreed it must be.  I now have a referral to a Rheumatologist who I am seeing in two days time. This has been a long lonely battle, there are times when I feel so alone in this. Fingers crossed I finally get the treatment I need!

United Kingdom

5 Responses to “A.S. Face 0673: Anna”

  1. I remember the morning stiffness…all gone now with Enbrel. It was like the first thing the Rhuemy asked me! And I think my GP told me to “get a new bed” (which reminds me, it’s been ten years since I “turned” that new mattress!). You’ll be getting better once you get that treatment Anna, I knows it. Nice feeling to get that diagnosis ain’t it?

  2. Your little girl is remarkably cute!

  3. Dear Anna,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  4. Dear Anna,
    I feel you pain! I started having symptoms at 16 maybe earlier according to my Mom. I am now 49 and was just diagnosed 2 years ago. I hope you get your answers. Keeping you in my prayers! Keep us updated.
    Kind regards,

  5. NHS…???…lol. Women also can have AS, it’s just more prevalent in males. Recently diagnosed myself…..best of luck to you!

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