A.S. Face 0651: Raewyn

Hi my name is Raewyn  I’m 52 years old and I  live in Melbourne, Australia . I wasn’t diagnosed with “AS” until about five years ago, though I have had alot of pain from my earliest twenties and continuous “Anterior Uveitis”   I spent many visits, hours at doctors, telling me it was sciatica, when I have struggled to take a step, try to walk,  I even at one stage, had a  doctor tell me, stop trying to get workers compensation  ! even though I hadn”t even mentioned this lol !  Unfortunately “AS” is a hidden disease ! and in between flare ups, no one in my case would ever know I had this.  Fortunately, five years ago, I found a great doctor, who said to me,  he thought it was some form of arthritis, but he wasn’t sure.  So after visiting a Rheumatologist, having MRI, Xrays and a genetic test, which confirmed I have the HLA-B27 marker, I got the diagnose of “AS” I try not to let “AS” Stop me from enjoying my life, defining who I am !  and while I can still walk, for “AS. ” is now progressed to my ribs and neck. I  am going to keep working , I just recently got back from Thailand and Indonesia and Malaysia with my hubby and youngest daughter, I have two girls and my oldest daughter is getting married next month and I’m looking froward in the future hopefully to enjoy having grandchildren.


6 Responses to “A.S. Face 0651: Raewyn”

  1. Dear Raewyn,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Thank you for sharing your story Raewyn. I hope you continue to see that good Rheumatologist, and are able to take medications that work for your AS pains, and still be able to live an enjoyable life. Welcome to the Faces of As group!!
    Your AS friend, Hedy

  3. Are u on facebook because we aussies have have our own AS support group on there. Great bunch if u have not already come n join us.

  4. Thank you for sharing your story with us. Good luck and blessings to you.
    Rory face 616

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