A.S. Face 0648: Cassie Seibert

Cassie

my name is cassie seibert and iam from Smithers BC canada.  i am 23 and i got diagnosed with AS 9 months ago, but i’ve had symptoms for 5 years before.  at first i always thought i was just screwed up and had problems all over that was just random. it was all mainly in my hips it would just flare up every once awhile and i could just take advil and that would help. but 2 years ago i had hip pain that would never go away that lasted for about a year. every day that passed i got worse nothing helped it. i had to drop out of university after i finished my first year because after my first year i could no longer walk so i had to move back home till we figured out what was wrong with me. i saw like 5 doctors and 4 physiotherapists no one had a clue what was wrong with me test after test they all showed i was normal and nothing was wrong, yet i couldn’t walk.  finally my doctor sent me to a ruemetologist i had no clue what they study but i was open for anything because i just wanted to know what was wrong with me. later i found out that they studied arthritis. i was scared after i found that out because i didn’t think i had arthritis i was in to much pain and it only hurt in one joint. my first reaction of the doctor was that i liked her she was friendly at the end of the visit she said ok i think you having ankylosing spondylitis but you have to get some blood tests done and do an MRI to prove it.  my mom was releaved that she thinks she knows whats wrong with me. me on the other hand wasn’t releaved yet because i had other doctors telling me what they think is wrong with me but it wasn’t true because the tests said i was normal.  she started explaining some things about AS and it all made sense and was true with what i was feeling. she gave me a brochure about AS and i read it. after all my tests she told me that i have HLB-27 and that my MRI showed that my SI joints are inflammed. and that proved that i had AS and we started playing with some more meds to see what will help. ive been on so much meds that i can’t remember what they were called but they were all anti-inflammatories. none of them worked, they would help out abit where i can walk a little more, but i still wasn’t good enough to do anything else. than she wanted me to try humira but i have to go on some more anti-infammatories so that i can get funding for humira. she gave me all the information about humira i was scared that i had to give myself a shot but, if it helped than i was more than willing to do it. anything just to feel relief and be normal again. i have been on humira for about 4 months now and its done wonders to me i can now excersise everyday i do yoga like 3 times a day and i am finally back in school and finishing off my second year.  than just a week ago i felt my first pain of AS in my shouldars, so i guess its starting to get worse. i feel happy that they figured out my problem and that i can go on with my life. even though it’s AS and it just gets worse but its better than no one having a clue what was wrong with you.  on top of having AS i also have a perminent back injury just above my SI joints that injury now leaves 2 of my disks inflammed as well, i had that injury for 10 years now and is feeling better now. my only pain i feel is from AS now.  but i just keep telling myself to stay strong and don’t allow AS to take me over i will fight to be the best i can and not allow AS to control me i will control it. thank you for letting me tell my story

Cassie

British Columbia Canada


12 Responses to “A.S. Face 0648: Cassie Seibert”

  1. Dear Cassie,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Love my girl. She us is strong

  3. so proud of you CASSIE

  4. Bravo Cassie! “Had problems all over that I thought were random….”, boy, ain’t that AS for ya. I always equated AS to “squeezing a baloon,” when one part flared down, another popped up. Maybe that’s whats happenin with your shoulder and Humira…BUT, let the Humira do it’s thing…and I gots’ a feelin the shoulder will flare down…a lot quicker than in the past. With my Enbrel, things still “pop up”, but they go down in a month or so…versus a year or so before…and not near as intense.

    “I will not let AS control me, I will control it”. Now, lets talk about your studies. Have you thought of something in the “alleviating suffering field”? wouldn’t it be neat if in, oh, say 10 years, you could say “ya know, I wouldn’t have been able to help that person if it WASN”T for AS?.” BEst revenge I could think of.

    • thank you Derek for telling me how its going to be with my other joints because ya the shouldars wasn’t that bad since the humira is helpful and in a few days it went down. but i still get really stiff in my shouldars in the morning

  5. Well written, Cassie. Thank-you for sharing your story. Good luck in your studies, Good luck in all your endeavours

    Donna

  6. Im sorry my baby it will be ok !!!!

  7. Good luck to you Cassie stay strong. I wrote another note for you and lost it some how. I hope this one gets to you. You rock. Keep up the positive it always wins over the alternative.

  8. Thank you for sharing your story. You are so young to have these problems. I hope the medications well help to stablize you so you have less problems and can have a normal life.

  9. thank you everyone. and Derek i am in school studying to be a conservation officer so yup lots of walking around and hiking. thank you for telling me how it was with my shouldars so far it has been exactly like that

  10. Hi Cassie. Thank you so much for sharing your A.S. Story with all of us. You have a wonderrful & positive attitude, which I love to see. I know how challenging, frustrating & painful having A.S. is, & you should be so proud to be back in school, achieving your goals, & dreams. I’m so sorry that you have A.S., but it’s so amazing how much Humira has helped you. I’m also very happy that you have found this incredible website. It has been so helpful to me, by reading other peoples stories, & the kind, caring, & very supportive people I’ve met here, & the stories give me courage, strength, & lots of hope. I hope you get the same feeling of comfort, strength, & friendship that I have here. I was really touched by your story, & I’m so happy you’ve shared it. Welcome to the Faces Family!!! 🙂 Stay strong, & stand tall, Lisa # 535

  11. Just like the rest of us …..i have it and so does aunt Mona’s in Atlanta. now u know where u git it from. sorry!!!!

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