A.S. Face 0619: Devon Langston

My grandfather was diagnosed with Marie Strambau (sp?) Disease when he was 13, which later became AS. His spine was fused by 19. As this was considered a “mens” disease and not well known, especially where I live, I have suffered since the age of 15 with no one taking me seriously. I have every symptom. No natural births because my pelvis cannot expand, worsening joint pain with IBS, unimaginable mid-back pain in the morning, and constant unrelenting low back pain. Finally, my new doctor listened to me. I’ve been telling docs for years I had what my grandfather did, but you hear the same things: but your so young, well you look good, or you aren’t as bad as he is. Although my grandfather or me do not carry the HLAB27 gene, you CAN still have AS. Thank you for putting it out there for people to recognize!

Devon Langston

North Carolina United States of America

6 Responses to “A.S. Face 0619: Devon Langston”

  1. Dear Devon,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  2. Hi Devon! Thanks for sharing! I, too, have AS without having the HLAB27 gene! Best wishes to you! Stephania/Face #445

  3. My daughter does not carry the gene either but has been diagnosed with AS. She is feeling much better since begining treatment.

  4. Well, Cookie and Stephania know my opinion of “non HLA-B27’ers”….I love em! So welcome to Faces Devon. All AS’ers are created equal. The “ony” good thing about AS for me, (besides the people I’ve met here) is the fact that now my nephew can get an early diagnosis IF he ever starts feeling symptoms. So there is always a silver lining.

  5. Same here! Although I do carry the gene. My grandfather, had it. Fussed at a 90degree. I asked several times to be tested. Makes me so mad when dr dont listen!

  6. Well this seems to be a reunion for the non HLA-B27 group! Same here. I thought I was in the clear when I got that lab result back. A few months later a rheumatologist told me I was a “slam dunk” AS diagnoses. Thanks for sharing your story.

    David Heflin, Face #567

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