A.S. Face 0606: Julie

My name is Julie. I’m 18 years old and I was diagnosed with Ankylosing Spondylitis 3 weeks ago. I’ve been living with symptoms since I was 15. I live in Idaho Falls, Idaho and am surrounded by the greatest of people. Every day its a fight to win-attitude over the pain. i’ve felt just about every emotion since being diagnosed with AS but I look forward to living a life with happiness and love-doing the things I want to do and letting nothing hold me back.
You can read more of my story at: http://jhdialogues.blogspot.com
Idaho United States of America

16 Responses to “A.S. Face 0606: Julie”

  1. Bravo Julie! You young people just energize us…uh…um…lets just say…upper middle aged people! Congrats on the diagnosis, let the healing begin!

    PS-I luvs Idaho Falls. I used to live in Island Park….many…many…well, when I was your age!

  2. Thanks for sharing your story! I’m in Rigby – Nice to “meet” you! Take care,

    Jenni Face 261

  3. I remember myself in the same predicament , my story is on here too …please read it , it may help , bless you . Gwyn .xx

  4. Hi Julie! Thank you so much for sharing your AS story with all of us. You have such an amazing positive attitude, it’s really so great to see. I understand exactly what you mean, about going through so many different emotions, it’s totally normal with AS. We all do. You have only just been diagnosed recently, & you seem to be handling it so well. You are an inspiration to young adults with AS everywhere. You sound like you love the people around you, support is a very importaant part of living with AS. Everyone here is very kind, caring, & very supportive of each other. I hope that you meet other really cool people here. You’ve found a very special place here. There is no judgment, & we all look out for one another. I hope that you love it here, as much as I do. This website is like a wonderful little world, where everyone can relate to each other, & meet people from all over the world. It’s not all serious, we also laugh quite a bit. I really hope you will feel at home here soon, Julie. There is also an AS information & AS resource board on the main page of the site, you just scroll down the list of names & you’ll see it. It’s really nice to have you join the AS famiy. 🙂 Welcome, Lisa.

    • Lisa-Thank you so much for your kind words. I feel welcome and at home in a place where everyone knows exactly what I’m dealing with. You are a gem.

  5. Dear Julie,
    Thank you so much for sharing your story with us. I know right now you must be feeling so overwhelmed. Please know that any of us will be happy to answer any questions you may have. We are always here for you.
    Sincerely Cookie

  6. Hi Julie! Thank so much for your kind & uplifting reply to my comment. I can see in your writings, what a special person you are. I read some of your Blog, & it truly confirmed you have a heart of gold, & such a wonderful attitude towards your AS, & to life in general. I’m so happy that you already like it here, & feel at home. You will get a lot from this website. I haven’t been here that long, about 3 1/2 months, although it took me quite a while to post my AS story, I have made friends here that I feel like I’ve know my whole life. There is a special connection, & sense of comfort, knowing all of these people understand, what others can’t, & feel the same way I feel. I am so inspired by your AS story, & your Blog. I hope you keep writing, you are quite talented. It is okay to cry, Julie. It’s a way of getting out sadness that would consume us if we didn’t. We all cry, but we also all laugh. I’m really happy that you found all of us. If you ever want to talk, or have questions about AS, I’m on Facebook & I’m Face # 535 on here. I hope you don’t mnd, if I continue to read your blog. I really enjoyed what I’ve read. Thank you, Julie your story, blog, & sweet comment have touched my heart. 🙂 Lisa

    • I’m glad that my blog has touched your life. That’s why I write. I hope that maybe my words will just help people out one day and I’m glad that you have enjoyed it and I hope you continue to read. Thank you so much.

      • Hi Julie. It’s good to hear from you. I really was touched by both your AS Story, & your Blog. I’m sure that your Blog can help a lot of people. I will definitely continue to read it. If you’d like, I’ll ask Cookie to add your Blog, to the list of Blogs, on The Faces of AS site. I’m sure she would be very happy to add it. Let me know, if you’d like to have your Blog added. Cookie asked me recently, about some Blogs I liked, & would like to see on The Faces of AS site. I’m really happy that you shared your inspiring AS Story, & your Blog with all of us. I look forward to reading more of your Blog, in the future. I hope that you’re feeling well. Take care, Lisa 🙂

    • Lisa,
      I would LOVE to have my blog added to the list. Thank you so much for all you do!
      Julie

      • Hi Julie! I’m so happy to tell you that Cookie put your Blog on the list. The Blogs are on the Information Board. There is a ton of information & resources, that Cookie spent 7 months putting together the Information Board. I know your blog will help a lot of people, & I’m so happy that it’s part of The Faces of A.S. Website!!! If you haven’t seen the Information Board yet, it’s listed after the names of the Faces stories, & it will say Information Board. There’s an area on the Info Board for doctors by state, AS Info, Blogs, so much went into creating just that part of the Faces of A.S. Website. I hope you are excited to have your Blog added to such a special place. Keep writing, Julie!!! You have a whole new group of people, 610 more people to write for, & I can just tell that a lot of those people will love your Blog, & it will touch their hearts! If you ever need anything, feel free to contact me. I’m really happy for you! Good luck, Julie. Stay positive & stand tall! 🙂 – Lisa

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