A.S. Face 0574: Nicole Kelley

My name is Nicole Kelley. I was diagnosed last year with AS. I have crohns disease also diagnosed a few years ago.  I’m not sure what to expect with AS but I am scared. I live in Port Hadlock Wa. Little remote town.  The friends I have don’t understand this disease and I don’t know a single person that has it.  Guess I’m looking for a little acknowledgement, people who are going thru the same thing.

Washington United States of America

7 Responses to “A.S. Face 0574: Nicole Kelley”

  1. OK Nicole, you can stop being scared right now. That “alone” business is over. Not any more. You’ve now got 574 freinds who “understand” this disease. I’m not gonna kid you, AS sucks, but now you got 574 freinds who are all trying in our own ways to “physically and most importantly mentally deal with and live with it. You’ve got a big pool of ideas to pick and choose from to find the philosophy that suits you. You’ve now got 574 freinds who HAVE lived with and ARE living with and dealing with AS. It’s very possible. It’s very probable that you will too. The scared thing-no more.

    PS-gonna give you the “most darling smile of the week” award!! You’re so lucky.

  2. welcome nicole there are lots of people on here and on facebook if your on it there is a group called living with ankylosing spondylitis i am in it so there is no need to be alone its a good group and you can get lots of answers there keep well bye for now dermot

  3. Nicole, I know it’s scary when they tell you that you have a little known disease but believe me when I say you are no longer alone. I do not have AS I have RA but my sister has as and she is face 128. These people have helped her not feel so alone and taught me more about AS than I could find by googling it. Now I understand better her need to do things herself plus the need for people to do certain things for her. Welcome to the Faces! you now have 576 friends you can go to when you feel alone!

  4. Nicole: Welcome to the group! Your photo is beautiful. I, too, was very scared, but after reading all these stories, I feel much calmer. I still do feel scared about my mobility sometimes, though. With the right meds, it is possible to live a full life. Like you, I don’t know a single person with this disease. I do know that I have 575 people on this website who understand what I am going through, though. Best wishes to you! Let me know if I can help you!
    Stephania/Face #445

  5. Nicole,
    I can’t remember what number I am now 480 or something. My name is Stephanie and I am newly diagnosed. We are all in this together. Feel free to write me anytime. I am sure others feel that way too. Hope you have a great doctor and you find maybe some alternative things to help you too. Read and ask about Chiro, massage, juicing, accupuncture which I haven’t tried. I am here for you !!

  6. Dear Nicole,
    Thank you so much for sharing your story.
    Sincerely Cookie

  7. Thank u so much for all your comments. I really appreciate everything that was said. I am going to look at things in a different perspective. I may not have anyone physically in front of me but there are so many a few clicks away.

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