A.S. Face 0560: Amrit Barat

Hello. I am Amrit Barat. I am from Kolkata, India. I am 22 yrs old. I’ve just been diagnosed with AS in April,2012. Everyday when I wake up in the morning I feel that I am not well. A stiffness and a pain always stay with me. I am trying to fight against the pain. But unfortunately most of the people does not understand that how much pain we have in our body. I only feel bad for my parents and for my girlfriend.. I told her to leave me, bcoz someday this pain will kill me. but she does want to understand that. She loved me too much and I also love her. But I know we cant spend our life together for this pain. And also feel bad for my parents they feel bad when they see me into a lot of pain. This disease is worse than all the other life killing disease.. In the case of other disease may be you will be cured with medicine or you will die… But in the case of AS you will surely die but with a lot of pain in your whole life.. It will killing the patient continuously day by day.. Lord Buddha said “Pain is the outcome of our sin.” But I don’t think we didn’t did that much bad work that we deserve that much pain.. Trying to fighting against AS everyday.. So we all who have AS are the WORLD STRONGEST PERSON IN THIS WORLD.. AND SOMEDAY WE WILL WIN AGAINST IT..

India


20 Responses to “A.S. Face 0560: Amrit Barat”

  1. I am so sorry, I can relate because I am 21 and have a boyfriend that feels the same way. I actually have a question for you… What treatments are you on? I ask because I am on Remicade which is a IV infusion and I have been offered a job in Sri Lanka. I am a marine biologist and would be working at aquaculture facility. My doctor said I may have to go to India to get my treatments but I am not sure how available they are there, since I have never been. Thanks and again I am sorry we have to endure this awful disease

    • Thank you cindy.. I am taking masacol 400 twice a day… I don’t think it is working on me.. If I missed that medicine for a single day the situation becomes worse for me… And one thing also i want to tell you that in India also don’t have any better treatment.. they just give medicine for less pain nothing else… Nice to meet you… Thank you again…

  2. Hi Amrit. I was very touched by your AS story, & I wanted to say thank you very much for sharing it on here. I also have AS & PA – Psoriatic Arthritis. I understand the constant pain you live with every single day, & I also understand that you feel like no one understands how you feel, but everyone of the people on this website, me included do understand. I’m so sorry that you have AS, & I hope that you know that AS is a genetic disease, & is not caused by any sin that you have done. It is NOT your fault, at all. I also understand how guilty you feel to put your parents & your girlfriend through so much, but they love you, & I’m sure they only want to help you. Your girlfriend does not want to leave you, would you want to leave her, if she had AS? No, I don’t think that you would. Are you being treated with medications for your AS & the pain that comes with AS? There are many medications available to help AS, & the pain you have. Have you seen a rheumatologist in India? If you have not, you should go to see one as soon as possible. I was diagnosed with AS & PA in 2001, eleven years ago, & I had symptoms for many years before then. You are right that, People with AS ARE THE WORLD’S STRONGEST PEOPLE & SOME DAY WE WILL WIN AGAINST IT!!! 🙂 You haven’t had AS for very long, & we all go through the very same feelings that you are going through now. Many millions of people around the world have AS. You are not alone. If your girlfriend does not understand, you need to explain to her that this disease called AS causes severe pain, & it is not your fault that you have AS. I live in New York City, New York, USA. It is hard living with AS, but it is not worse than a disease that is fatal. There are new medications available, & more medications are coming, that are better medications. Please do not lose hope. I know how hard it is, but you are strong, you can fight this terrible disease, & you are not alone. If you want to ask me any questions, or if I can help you in any way, please let me know. You are very brave & courageous for putting your story on here, & very lucky, too. There are so many nice, caring, & supportive people that are all here to help. I have made many good friends on this website, & I hope you will, too. Please don’t be so hard on yourself, Amrit. That will not help you. You have to try your hardest to stay positive, & please do not ever lose hope that one day there may be a cure for AS. You seem very nice, & if you ever want to talk about AS, or just need someone to listen to you, I would be happy to help you. Thank you, Amrit, for sharing your AS story. It really touched my heart. Sincerely, Lisa

    • First of all I want to say thank u from the bottom of my heart and I want to say that you are really a good person.. I am taking a medicine as per one doctor’s prescription.. but there is few personal reason I had that’s why I am losing my hope.. I don’t want share all that reason in front of everyone.. I think you can understand the reason behind it… It is really a difficult fight for me… And the chance of my lose is almost 99%.. I don’t want to push away my girlfriend from me but the fact is I really love her too much… and that’s why I don’t want that she face lots of pain for me… It is really a difficult situation for me… I don’t know what to do in that situation.. I know I have to fight against it but I really don’t how long I can fight in that situation.. By the way again I want to say thank you lisa for your support…

      • Hi Armit. I have been so worried about you, & I have kept you in my thoughts & my prayers every day since I read your story. I was so happy that you wrote back to me. Your welcome, Armit, but there is no reason to thank me, but I very much appreciate what you wrote to me. Thank you from the bottom of my heart. I would like to be your friend & I promise that I will try my very hardest to help you as much as I possibly can. I am touched by all the kinds things you said about me. I understand how you feel, & I have felt the exact same way. I know how hard it is to see your parents & your girlfriend so upset & sad because you have AS, & all of the pain that comes with AS. I know you don’t want to cause your parents or your girlfriend any sadness. I felt the same way that you feel about my parents & my boyfriend. I tried to push everyone away, but that is not the right thing to do. They do not want that. You need your parents & your girlfriend now, more than ever. They all love you very much, & they are sad because you are in pain & because you have AS, but they would be heartbroken to lose you. They don’t want you to go away, if you did they would be much more sad. I know it’s not easy to tell people your problems on here, & you said that there are other personal things that are making you lose hope, & there is 99% chance you will lose. It breaks my heart to hear you say that. I hope you know how concerned I am for you, & how much I want to help you. if I gave you my email address or my Facebook- my full name, could you reach me? Do you have a Facebook account? Or access to email? I would be very happy to speak with you privately. Would that be okay with you? I will give you my email address & my Facebook name, if there is another way that you want to talk, let me know. I don’t want to push you to talk to me, or to tell me anything you do not want to talk about. This is all on your terms, & it’s completely your choice. I am offering you my friendship, & help if you want it. Don’t feel obligated to contact me, I would understand if you are not ready, but if you are, I would be honored to be your friend. My Facebook name is: LISA THIERMAN & my email address is PINKBERYL@AOL.COM . I want to help you because I know how difficult it is to go through this, & have no one that understands how you feel. I want so much to help you. I know how it feels to have no hope, & want to just give up. This is very hard to get through, especially if you have no one to talk to. I have been praying for you every day, since I read your story, it really touched my heart, & I want to help you. Please, Armit, talk to someone, I hope you will write me, I understand that you are so very sad, depressed, confused, afraid, in terrible pain, & you feel alone, please don’t go through this alone. Armit, you are a very good, very kind, very intellegent, & very caring person. That is all easy to see. I hope we can be friends. Take as much time as you need to think about what I said. I am here for you any time you want. I hope to hear from you soon, but I will wait as long as you need, & I will continue to keep you in my thoughts & in my prayers. You are both brave & courageous, & I know you will get through this very difficult time. Armit, please don’t lose hope, I know it feels like things will never get better, but that is not true. It will get better. You are not alone, Armit. There are many reasons to have hope. Please Armit, you have my total support, & the support of so many others here. I wish I could take your pain away, if I could I would do that. Please, hold on to that 1% of hope you have, & hold on tightly. It will get better. I do understand, Armit. I really do. Thank you from the bottom of my heart for writing to me. I hope you will write to me again. Your Friend, Lisa. 🙂

  3. Hello Armit,

    Sorry you are in so much pain. Keeping friends, family and boyfriends/ girlfriends is important, try not to push them away, but let them help support, you know that you would do the same for them. Love and friendship is important, pain and the situation is much easier to deal with that support 🙂

    Hope the future becomes brighter for you.
    Best wishes
    Eve (518)

    • Thank you eve.. I really don’t want puss them away those who close to me.. But the problem is that I don’t want to make them sad for my disease.. Because I really care about them.. I can tolerate my pain until my last breath but I can’t tolerate that someone is felling so much sad because of me… Sorry but that is the fact about me… And thank you for you support..
      I also hope the future becomes brighter for you..

      • Hiii my name is Asif Arshad I am 22 years old only ..
        I have diagnosed ankylosing spondylitis 2 months back ..
        I just want to know how many people have problem in their stomach also ..
        Bcoz before diagnosed doctor diagnosed me irritable bowel syndrome n now I got AS …
        So plzzz share ur exeperianceexeperiance guys..

  4. Amrit: You have not sinned to cause this pain. And Eve is right–keep your girlfriend and family close–they will be your biggest support. Have you been to a rheumatologist, Amrit? They can relieve you of some of the pain. I was so overcome with pain that I wanted to give up, but I was fortunate to get to the right doctor who could help me with some medication. I thank God for her every day. This disease was taking away my ability to walk and move. I wish you all the best, Amrit. I hope you will keep us updated and will call on any of us here in this site for support. STAY STRONG! Stephania/Face #445

    • thank you stephania… I feel really sorry when I read your comment.. I will surely give all of you my update… I really like this site and also like all members of this site… Only you people can understand what is going on me presently… because wall of we are going on the same path… Can I ask you for a favor??? can you tell me which meditation help in such condition… thank you again…

      • Amrit: The best medications that have helped me so far is methotrexate injections, as well as Mobic for inflammation. Good luck, my friend. Let me know if you have other questions, and bless you!
        Stephania

  5. Amrit, You need to get some help with the pain, it is consuming, but get some medical care and get on some meds to help with the inflamation at least you will be able to funtion daily. The mornings are always the worst the most of us, stretch and walk if you can. I pray you find some relief.

  6. Thank you for your story. I relate – telling those I care about to leave me because I know I can not be the person I want to be for them. We (those with AS) are the strongest people in the worlds!

  7. My heart goes out to you Amrit….Eve and Stephanie are right, keep those you love, close by. Once you get your pain under control you will be able to live a relatively normal life. You need to find a caring team of medical professionals. You may need to search for a bit but they are there. And remember, let those that love you in…..that is very important. This disease is lonely enough as it is!

  8. Dear Amrit,
    Thank you so much for sharing your story with us. I hope that you find the peace within, to know one day this was not your fault in any way and that you deserve to be loved and to love.
    Sincerely Cookie

  9. Thank you everybody… I didn’t expect that much support I will get… I am trying to be normal but it is a really difficult task… One thing I want to clarify to all of you… I really don’t want to push them away from me who are close… But I can not be that person what I want to be for them… And I don’t want to fell them sad because of me… That’s why I am trying to go far from them… Sorry may be I am taking wrong decision but I don’t think I have any other choice in my condition…

  10. I have asked the same question at times. What could I have done that was bad enough to be punished so. NOTHING! It is simple biology. please take care of yourself and know that I am wishing all of the best for you. We ARE, the STRONGEST PEOPLE IN THE WORLD! your new friend, Suzanne

  11. If you would please email me at Cookiehasas@aol.com with your mailing address I will be happy to send your Faces of AS wristband to you.
    Thank you so much Cookie

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