A.S. Face 0456: Krystle Pogson

I am 27 years old and have had AS since I was 8 years old. I have suffered for many years with excruciating and debilitating pain.I have been on almost every med under the sun and they still only relieved some of my pain and gave me no relief from symptoms. My sacroiliac joint (SI joint) fused when I was 21 which left me in even more pain and walking with a cane. In March 2008 I married my best friend, and in Feb 2009 I gave birth to my beautiful daughter who weighed 6 little lbs when she was born and I couldn’t even lift her up. In 2008 I met a doctor in Toronto, Ontario Canada named Robert D. Inman, M.D. After extensive thorough testing, a formal diagnosis of AS, and no relief from alot of meds, in Feb 2011 Dr. Inman suggested me go on Remicade. It has saved my life. I still live with the damage that AS has caused to my body but hopefully Remicade can stop the progression of AS so I am able to look forward from here. My daughter is now almost 3 and I have been on remicade for just over a year. I don’t use my cane, can carry my daughter and run around with her and I take absolutely no other meds. I never thought a day would come where I could play and run with my daughter. Thank you to Dr. Inman and his team of doctors for treating me like a person not just a number and giving me the quality of life I had been dreaming of my whole life and for giving my daughter the playful mother she deserves. A special thanks to my wonderful husband who found Dr. Inman and wouldn’t take no for an answer. We all deserve to make our own destiny and not let a disease, disorder or for that matter a doctor tell us what that destiny should be. Although it may seem frustrating and exhausting at times, there is hope out there that you will find peace and serenity. Keep believing and find a good support network of people who love and care about you who will help you through the push of finding your answers you are searching for.
God Bless
Krystle Pogson
Ontario, Canada

8 Responses to “A.S. Face 0456: Krystle Pogson”

  1. It seems to be the night for HOPE. When I read your story Krystal, and look at your photo, I think of all the kids on FACE’s, and I think of all their Moms, and I think you just gave all of them HOPE , big time HOPE, that with treatment they can have wonderfull lives.

    And Jeania, I hope you’re still reading FACE’s. I think Krystal just gave you the HOPE you were looking for. It’s funny. It seems that when we cry out the most, is when we get the answers we need. God Bless.

    • I am from india. I saw your blog and it’s given me some ray of hope. now i am little enthusiastic . actually my elder brother has AS since he was 17 years old and now he is 31 year old. pls help me, send me some tips and doctor’s detail. I want to contact with you for further information.

      • I also live in India. I usually take etoricoxib and sulfasalazine. Things changed in my life, when I started Water Aerobics. I live in Mumbai and you can find Water Aerobics classes if you just google. I was not able to move at all just before it. I followed the schedule and diet rigorously for 2-3 months and after finding recovery symptoms, started with light weight training. Today, after two years am once again in great shape. I do cardio on alternate days and weight train on others. I am an aspiring Theoretical Physicist and a strong motivation in life is a big boon to overcome any obstacle you may face against it. All the best.

  2. Thanks for sharing your story Krystle…can I ask what your symptoms were like when you were 8 years old? My dad has AS and I have been diagnosed with Sacroiliitis. My daughter constantly complains of ‘poorly legs’ but despite several trips to our doctor, nothing has been diagnosed.
    God Bless and best wishes, Louise

  3. I am still reading….I am soo looking forward to being able to play with my kids like they deserve, I’m so glad I read your story, my bigest heartache is watching my kids when I’m supposed to be playing with them, a tortured bystander in my own life, I have had so little faith in the docter’s at this point but I’m starting to really hope again thank you for sharing your story, it brought tears to my eyes and hope to my heart

    • Everything is gonna be alright Jeania. A wise Woman told me tonight that we have to have patience though. But it’ll be alright.

  4. Dear Krystle,
    Thank you so much for sharing your story with us.
    Sincerely Cookie

  5. Krystle: Welcome to the group! So glad that Remicade has helped you get stronger! Stephania #445

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