A.S. Face 0441: Kristie Pelletier

My name is Kristie Pelletier
I was diagnosed in 1997.
The first time I missed school because I couldn’t turn my head, I was 7 years old.
I had many times that AS was affecting me when I look back now, knowing;
long before I was sick enough to be diagnosed. That’s the problem, you have to get very sick to end up diagnosed.
Jesus is the reason I am sustained through it all.
He holds me and loves me and it is enough.
There is no suffering that He has not already overcome, and one day I will too.
He holds me through it all…ALL… through it ALL. This place with all of you who KNOW…
you all KNOW what is encompassed in that word… ALL. I don’t have to tell you or try to explain it.
There is comfort in that too.
I have a sister who also has AS.
It is terrible, and w!onderful to share this with her.
Terrible, because I long for her to be well.
And wonderful, because we have been there for eachother and we both truly KNOW…
My life is filled with much joy.  I have joy in my husband who is always loving and kind, and in my children, and now grandchildren.
That is now.
It has not always been that way.
The joint repair has begun…  I take humira to keep my eyes… I have had chronic uveitis and scleritis that won’t adequately respond to steroids. I have lost some vision, I keep pushing on.  I have a great family and a very active, albeit twisted, sense of humor.  We Laugh A LOT!
I am thankful for all of it.  I have learned perseverance, strength and compassion…   things truly learned only the hard way.
this is me with my grandson Johnny
and this is me with my husband Pete
this is my husband and me with our pup Bo.  He is much bigger now.
He is a guaranteed walk for me. Better than any gym membership.
Maine United States of America
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2 Responses to “A.S. Face 0441: Kristie Pelletier”

  1. Dear Kristie,
    Thank you so much for sharing your story with us. It was just what I needed today.
    Sincerely Cookie

  2. Dear Kristie, I know what you mean when you say you have to get really sick in order to get diagnosed. Hopefully we can change that, thanks to this awareness project. God Bless.

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