A.S. Face 0396: Mathew Bailey

Hey there. My name is Mathew Bailey and I live in Alberta. I was diagnosed in April 2011 with Ankylosing Spondylitis, Fibromayalgia, and Musculoskeletal pain. After I went from Dr to Dr seeking help with the pain. The symptoms started in my hips at age 17. I am 23 now. The pain left me bed ridden. Moving any part of my body would feel like somebody with jaws of life at my hips. Lasting for weeks at a time this happened twice a year usually around Spring and fall but not always the same times. I was hospitalized in Oct, 2010, after weeks of not being able to sleep, one night it was so severe I was crying and was just going to leave the house I was so frustrated. Nothing felt comfortable for weeks. Well, I didn’t make it ten feet from the bed and I fell, the pain dropped me. I couldn’t move my arms, I couldn’t move my head. I felt rusted, any movement causing extreme pain. I would not wish this upon anybody. Since then, the pain has become more chronic and less bed ridden debilitating pain. However the inflammation I go through is very extreme some days. My jaw continues to feel like a pop can being twisted. My hands and feet are sensitive to heat and cold and are already losing strength at my age.

That’s a little of the bad and here’s a little of the good. I have always had a passion for biking, it has a great benefit on keeping mobile with the least possible impact or friction. Swimming is another great way to keep active. Hot yoga and listening to my body. Vitamins and eating healthy, currently on the no starch diet! I do stay away from any medication. Just living with it and being a positive impact in society :] Thank you for your time and all that you are doing with ASAP

Alberta Canada

4 Responses to “A.S. Face 0396: Mathew Bailey”

  1. Mathew, a good freind of mine has had horrible RA since he was 18. He never took any meds cause he was worried about poisoning himself(actually the real reason was drinking is a big no-no with meds and we were young). About 8 years ago I said you gots to go see my rhuemy. The next time I saw him was at a funeral-he came up to me and wispered “I got only one thing to say-methotrexate!” The meds literraly gave him his life back. I mean he raved about it for the next five years. It’s fine to stay away from the Meds, but just know they are there for a fallback-if you need them.

  2. Dear Mathew,
    Thank you for sharing your story with us. I love that little guy you have with you! Please reconsider the medicine that along with what you are doing will give you a long and productive life.
    Sincerely Cookie

  3. love the story and photo!

  4. I felt your pain while reading your story. My hips are getting worse daily and I also have the terrible heat/cold sensitivity, that others don’t understand. I can’t even hold a cold drink without my hand itching! Sounds like you have a good attitude. Like you, I tried to avoid meds, but at this point I simply can’t or I am not going to be able to function or care for my child. This is nightmarish, I know…:( I wish you the best. God bless..

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this: