A.S. Face 0392: Sarah

Hi, I’m Sarah from Scotland and I am 21 years old. I was diagnosed with Ankylosing Spondylitis when I was 12 years old and I have inherited it from my mum. I had had the odd pain as a child but nothing major. It was when I had a massive flare up just after I started high school that I was diagnosed. Since then I have been on a number of medications and have had multiple steroid injections. It affected me lot at school, especially when I had a major flare up and was struggling for a full year with the pain. This caused me to withdraw from my friends and eventually when I started to get better and started going out again I began to have terrible anxiety and have been taking medication for that ever since. I was on methotrexate for a few years and this also caused me many problems. As I knew the effects it was going to have on me every week I used to take about 2 hours each time to finally let the nurse inject me. I would get myself so uptight about it that I would be sick before I had even had it. I have now been on enbrel for about 5 years and since I have been taking it I have generally be feeling ok. I have the odd bad day but nothing compared to what I used to be like.
Scotland

4 Responses to “A.S. Face 0392: Sarah”

  1. Hi Sarah from Scotland! When I had my big “AS blow up” ten years ago, I too withdrew from all my freinds. They still whisper about “my breakdown”. I can’t figure the psychology out. It’s like Pain makes you want to be alone. Or pain makes you so desperate to “change your life,” that others get pushed out of your NEW life. Or you’re so tired of “explaining” it to others, it’s easier too remove the “others”. FAtigue equals crankyness. Fatigue doens’t like chaos. Or maybe its just as simple as pain cascades into depression. Perhaps herein lies the biggest battle in our world. Now I’m bringin myself down. SOOO
    I came out of my breakdown as the flaring came out of it’s. There’s no need to “explain” to our new AS freinds. WE can embrace them in our NEW life. I’m glad Enbrel has enabled you share both lifes with your old freinds and your new Sarah!! (does any of this make any sense!!)

  2. Hi Sarah from Scotland, this is Jackie from Scotland (no 5) xx

  3. Dear Sarah,
    Thank you so much for sharing your story with us. Stay strong.
    Sincerely Cookie

  4. Hi Sarah from Scotland, this is Ross from Scotland (Im in the better half of Scotland than Jackie!!). You are never alone with AS on here, i too withdrew from my friends and lost a lot of friends through my AS. We all support each other on here though. If you ever need help or need to talk about AS etc, contact Cookie and ask her for my email address and drop me a note. Ross (Glasgow)

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