A.S. Face 0385: Nicole Miller

I’m 27 living in Australia. My father has AS, so I assume thats where I inherited the hla-b27 gene. I remember my first flare at age 23, left me almost crippled for over a month just thought it was a dancing injury even though I didn’t recall hurting myself. I’ve had constant back pain since age 17 but put it down to the high heels/platforms etc I wore or all the mischief I was always up to. About 6 weeks ago pins and needles/numbness appeared in my left pinky and tip of left ring finger so I went to the doctors after the 2nd week of numbness to find out what was wrong. Subsequent blood tests/xrays showed I have AS. Still haven’t got feeling back in my pinky yet either, hoping the physio sessions will help with that. I have my first appointment with rheumatologist next week and start physio on Tuesday. I work as a photographer which is getting harder and harder as after a 6-8 hour shoot day I can hardly walk for 2-3 days afterwards. Trying to stay positive about the situation but its not easy, especially as I’ve seen first hand what it eventually does. I’m hoping advances in medicine every day will eventually find a better solution to help us all. The hardest part is I’d always held hope that one day my back would just be ok again, but finding out that never again will I have 1 day of my life without pain is a bit difficult to swallow.


4 Responses to “A.S. Face 0385: Nicole Miller”

  1. Hi Nicole! 🙂
    Keep smiling! You are not alone.
    Marti (face 199)

  2. You’re not alone anymore Nicole. But I think you’re getting ahead of yourself when you worry about a life in pain, when you haven’t seen your rhuemy yet. (us old hands (like Marti-just kidding!!) call em “Rhuemy’s). Us old hands (like me-not kidding) know that fear and worry are a waste of time. Please be optimistic that the Rhuemy will find the right medicine for you. The odds are high that your current pain will be better after treatment.

  3. Dear Nicole,
    Thank you for sharing your story with us. Rememer from this day forward you are never alone.
    Sincerely Cookie

  4. you not alone nicole and wolcome to aboard

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