A.S. Face 0376: Diedre (Dede) Vaughn

I am on the left! I finally diagnosed myself after getting dxs like :you’re neck is all jacked up” It started out over 20 years ago with sciatic pain and having every treatment under the book! I finally found a doc that would listen, although he told me he didn’t think I had AS. He did the xrays and blood work. The soft tissue in my neck is completely calcified and the t-spine is close. My right hip and shoulder are fused and I am HLA-B27 positive. That was all the proof the rheumy needed to agree with me! I am on Enbrel, but had to go off for 7 weeks after the initial infusion because of an infection. I have now taken 6 injection in a row! I hope to someday soon be able to walk straighter! For me, most of the time, fatigue is by far the most debilitating symptom! I also have Sjogren’s Syndrom and Diabetes.
Diedre (Dede) Vaughn — ‎

“You don’t have a soul. You are a soul. You have a body.” ― C. S. Lewis

Arkansas United States of America

United States of America

3 Responses to “A.S. Face 0376: Diedre (Dede) Vaughn”

  1. Does your neck grind like mine Dede?

    “…you are a soul. You have a body.” And sometimes we feel trapped inside it, just along for the ride.

    Good luck with the Enbrel, it’s helped me. (when we get 1000 face’s, I say we lobby to make the needle smaller!!)

    Seriously, I see the strength of the human spirit in you Dede. Thanks.

  2. Thank for sharing your story Dede 🙂

  3. Dear Dede,
    Thank you so much for sharing your story with us. I absolutely love your quote. Wishing you the best.
    Sincerely Cookie

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