A.S. Face 0363: Paul Curry

Paul Curry’s Story Of Growing Pains

 My name is Paul Curry, I am 30 years old from Durham in the UK, and I have Ankylosing Spondylitis.

I really do battle hard against my disease every minute of every day, and some days are better than others. Work is almost impossible but it isn’t an option just to sit at home every day. I take daily doses of morphine, diazepam and anti TNF injections aswell as weekly complementary therapies (costly but effective) and daily exercise and hours of stretching to stay mobile.

I am 30 years old but have suffered enormously since I was 16. I was misdiagnosed for 11 years until I was eventually diagnosed and found a rheumatologist that would treat me with Embrel.

I now manage my pain but had to give up all forms of sport which I used to play 7 days a week at the age of 21 as the pain became too much to bare.
I’m heavily involved in raising AS awareness, working alongside NASS to promote AS awareness. I am also very happily married with a wife who is extremely supportive and helps me make trips around the world to places like Thailand, hong Kong, Europe etc. It is difficult, but I’d this disease is to get worse, I want to do as much now as possible.

Unfortunately my younger brother has also been diagnosed with AS and is also being treated with Anti-TNF injections and painkillers.
AS took over my body many years ago but I will not let it take over my life – yet.

If you would like any further information about me I was featured in a national newspaper 2 years ago

http://www.dailymail.co.uk/health/article-1334188/The-growing-pains-cripple-life.html

Kind Regards and keep up the good work
Paul Curry

Durham United Kingdom


7 Responses to “A.S. Face 0363: Paul Curry”

  1. It makes all the difference in the world when you’re married to someone who supports you no matter what 🙂 That ‘s something that I am so blessed to have in my life. I was diagnosed 5 months after having our second daughter and my life couldn’t be filled with more love and happiness. Best wishes to you and I hope you and your brother eventually get some kind of pain relief. The only thing that has worked for me so far is x-ray guided injections into my SI joints every 6 months. You may have tried them already, and I know people with AS feel pain in different areas, but I’ve found lots of people that didn’t know about them and they allow me to live an almost pain free life 🙂 Your story made me smile, so thanks!

  2. Dear Paul,
    Thank you so much for sharing your story with us. I appreciate your dedication and hard work in raising awareness for us. I hope that you are blessed to see all the parts of the world that you heart desires.
    Sincerely Cookie

  3. Welcome and thanks for sharing your story.

  4. Damn, your an inspiration Paul.

  5. What an inspiration!! Thank you Paul, for sharing your story 🙂

  6. I love you x

  7. Hi thank you for shairing your experiences with ankylosing spondylitis I am very pleased to hear your storey, and it’s great that your brother has such an inspiring mentor. My question to you is how dangerous is it to travel to such areas as tailand and Hong Kong whilst taking immunosuppressive medication and what sort of precations and problems have you faced? I am confident with the transportation of the drug this I have no problems it’s just the vaccine issues that worry me when visiting such areas, I am very keen to travel and see as much of the world as possible and any sort of response or input would be a great help thank you.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

 
%d bloggers like this: