A.S. Face 0313: Lisa Slaydon

I was having trouble with back pain, stiffness.  I was a single mom and had to work to support my children.  It was getting more and more difficult to go to work.  I would have to pull myself up by the bootstraps and get going.  On weekends it was hard to go have fun with the kiddos due to the pain and stiffness not to mention having to push myself to get through the work week and rest up to make the next week.  I was on my feet all day.  It was hard to keep up.    It was hard to not be so emotional at work.  Everyday chores were difficult.  The stress and pain   was taking a toll on me.

I have gotten my knees injected with steroids several times as well as my shoulder and ankle.  I have not found anything that works or helps.  I am limited on the things I can take because I have only one kidney and I have recently been diagnosed with CKD Chronic Kidney Disease.  I have pain, stiffness everyday all day.  It wakes me up at night.  I have waked up crying.  My hip would hurt so bad that laying on it would be so painful.  I can’t even begin to explain the pain.  I have recently added the chest pain. The worst for me is the sacroiliac.  I also have been diagnosed with ulcertive colitis, as well as Hashimoto’s.

It is hard to not dwell on the way things have turned out for me.  I try really hard to make the best of these diseases.  It is very difficult to stay positive some days.  I do however have some good days!  Truly thankful for the good days.

Pitkin,  Louisiana United States of America

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10 Responses to “A.S. Face 0313: Lisa Slaydon”

  1. How do you make it through the work day? I’m on the verge of quitting because I can’t stand the pain and fatigue any longer plus the stress is putting me over the edge.

  2. Thanks for sharing Lisa … you are not alone.
    (((gentle hugs)))
    Marti
    (face 199)

  3. Hello Lisa, So sorry to hear how rough it’s going right now – I know that hip pain well. As Marti said, you are not alone. Peace – Hope – Love, Jim (103)

  4. HI Lisa,

    I am so sorry to hear of your pain, it brought my own story back to me in an instant. I too was a single parent for a long time whilst suffering from AS. It was extremely difficult to bring up a family, keep house and job while in chronic daily pain – the struggle was immense.

    I was feeling overwhelmed, exhausted, in constant pain and depressed most of the time The worst part was my children witnessing their mum going form always being active, running around and doing things with them to complete and debilitating agony.

    I am now on Humira and doing much better, my children are now young adults and I have the best fiancee in the world.

    Things will get better, even a few years ago, I would not have imagined my life could be so infinately better.

    My thoughts are with you, stay strong sister xx

  5. So very sorry, your courage is inspiring!

  6. I so understand the “on my feet at work” frustration. I also understand the “I wish I could go back in time and change what I do for a living-but it’s too late” frustration. Saturdays I just “crash”. Sundays I can do things. On the other hand, I’ve been doing this for the last 11 years since diagnosis. Through all the meds, it hasn’t gotten worse, in fact it’s a lot better, and it BLOWS me away that I HAVE done this for the last 11 years. I’m not saying I’m strong, I’m saying I don’t know how that happened. But it does help a little in my struggles today knowing that I have “made it” so far. The “brass ring” is reaching for that office job. All we can do is persevere Lisa and try to see the pretty in the world. Like those flowers on your shirt!

  7. It gets harder and harder to go to work. I just keep saying one more day. Thank ya’ll so much for the encouraging words. We have to make it through this! I get so discouraged most days because people do not understand. They think I don’t look sick. But it is catching up to me and starting to show in my face as I can see by looking at my picture.

    May the Lord bless each of you and make your plight a little easier!

    One Day At A Time

  8. Lisa, I can’t help but notice the flowers on your shirt. You aren’t a nurse are you? A friend of mine was a nurse on her feet all day- with Osteoarthritis, she was worried that if she got a new job she would get a big cut in pay, but after the Ruemy sent the hospital a “letter”, they found her a new “desk” job, at the same pay, and she hasn’t been happier in years. Most times our worse fears never come to pass. If you talk to your bosses, it might just give them a chance to be compassionate.

  9. Dear Lisa,
    Thank you so much for sharing your story with us. That is the part I struggle with the most too, staying positive.
    Sincerely Cookie

  10. Holy Crap, single working mom?! You are my hero. Wow. You are a very stong, amazing woman. (((HUGS))

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